Ebooklet -Avascular Necrosis-2016

Guest Speaker

Tonight the support group I started

Avascular Necrosis/ Osteonecrosis Support Int’l has a guest speaker

I can’t wait to hear Dr. Michael Mont discuss Osteonecrosis and Joint preservation

More to come ……

He discussed Osteonecrosis and the 3 decades he has been treating it.

He answered a lengthy Q and A from several members.

He prefers to preserve the joint so we discussed CD(core decompression) it’s success and failure rates, surgery

He is doing a second Q and A

June 19,2018

Avascular Necrosis / Osteonecrosis Support Int’l.

https://www.facebook.com/groups/DeadBoneDiseaseAVN/

Non -Surgical Treatment’s of Avascular Necrosis – Osteonecrosis

Non -Surgical Treatment s of Avascular Necrosis – Osteonecrosis

If osteonecrosis is diagnosed while damage is limited to a small area of bone sometimes doctors can try PRP injections, A2M injections, or Stem cell injections which is said to be the gold standard of injections.

I will get into those treatment options another day . And it may also be effective in up to stage 3 of AVN-ON but the faster you get it treated the better the outcome. It also depends on how you got your avn that will determine the outcome.

Let’s be real here

Avascular Necrosis –Osteonecrosis can be incredibly painful. And only those who have it understand the pain.

Medication to treat osteonecrosis may not be effective in people who have medical conditions that require treatment using corticosteroids, immunosuppressant medications, or chemotherapy. These medications may counteract osteonecrosis treatment.

During treatment with medication to stop the progression of osteonecrosis, your doctor monitors bone damage by taking periodic images of the affected bone for six months to a year or more. Some doctors may also recommend using crutches or a brace to remove stress from the affected bones.

As the bone starts to heal, physical therapy can help you maintain joint mobility, strengthen muscle groups that support the joint, and make changes to the way you walk to protect the affected bones.  If the disease does not progress and putting weight on the joint becomes less painful, nonsurgical treatment may be all that is needed to recover from osteonecrosis.

Bisphosphonates

Bisphosphonates are prescription medications that reduce bone loss by destroying cells that contribute to the degeneration of bone. This helps preserve healthy bone tissue.

Your doctor may recommend that you take this medication by mouth or injection for six months or more, depending on the size of the osteonecrosis lesion or lesions and whether symptoms improve during the first six months. If an injected form of medication is prescribed, your doctor may give the injection in his or her office or show you how to administer your injections at home. Some bisphosphonates are taken by mouth or injection once a week or once a month, others less frequently.

Your doctor will continue to evaluate the effectiveness of treatment, using periodic X-rays or MRI that can reveal changes in the bone’s health. The doctor also looks for signs of side effects from bisphosphonates, which may include bone fractures outside the affected joint, and conducts regular blood tests.

Long-term use of bisphosphonates should be monitored by your doctor.  And also may cause avn-on in jaw if you need on going dental work.

Nonsteroidal Anti-inflammatory Drugs

Bone loss due to osteonecrosis may be painful, especially in the hip and knee joints, which bear much of the body’s weight. Nonsteroidal anti-inflammatory drugs, or NSAIDs, sometimes work by reducing inflammation in the soft tissues surrounding the joint, relieving pain and swelling. These over-the-counter pain relievers include ibuprofen, naproxen, and aspirin. It may help in the short term but again talk to your doctor.

Long-term use of NSAIDs can cause side effects, including upset stomach or ulcers. If joint pain persists for more than a month, talk to your doctor before continuing use.

Statins

Statins are medications that lower cholesterol levels by reducing the amount of fatty substances called lipids in the bloodstream. If statin’s remove lipids from blood vessels leading to a diseased bone, more blood can reach the bone, allowing it to rebuild bone tissue. This may slow or stop the progression of osteonecrosis.

Statins can cause liver abnormalities and muscle damage, so your doctor takes your overall health and medical history into consideration before prescribing them for long-term use.

Medical Marijuana

No other pain relieving medication is less toxic than cannabis, even aspirin or Tylenol. This is why cannabis as medicine can be an excellent choice for pain.  A proper cannabis recommendation requires more than just a few minutes of a doctor’s time, and includes information on cannabinoid content, strain selection, and delivery methods. If you’re not getting this information from your doctor, you’re not getting a real cannabis consultation and are missing information on the full value and healing potential of the plant. Cannabidiol, a nonpsychotropic component of marijuana, may enhance the healing process of bone fissures, according to a new study.

CBD oil is an entirely different compound, and its effects are very complex. It is not psychoactive, meaning it does not produce a “high” or change a person’s state of mind. Instead, it influences the body to use its own endocannabinoids more effectively and can ease pain.

Pain medication  

Most pain medications for bone cancer are taken by mouth, in pill or liquid form. If swallowing is difficult, pain medication can also be delivered through a patch placed on the skin, an injection,talk to your doctor or see a pain management specialist if needed . No one needs to suffer in pain

Physical Therapy

When prescribed in addition to medication, physical therapy may slow down the progression of osteonecrosis and provide some pain relief. During the early stages of treatment, if the disease has affected the hip or knee, physical may suggest using crutches or a cane to help you move around without putting any weight on the affected joint.

You may use crutches or a cane for six weeks or more, depending on your age, the location of the lesion, and the severity of the disease. This gives the lesions time to heal and may prevent further joint damage.

Rehabilitation experts also offer heat and ice therapy, which may provide temporary pain relief deep within the joint, as well as acupuncture and acupressure, in which very thin needles or massage are used to stimulate blood flow and reduce inflammation.

After you can put weight on the affected joint without pain, physical therapists can customize a routine of simple, low-impact exercises to maintain range of motion in the affected joint as well as build strength in muscles that surround and support the joint. For example, stretching exercises and movements such as leg lifts or squats can prevent the joint from becoming stiff.

In addition, adding exercise such as tai chi or  or my favorite is  qi gong ,  or using a stationary  or recumbent bike  another favorite of mine or add swimming to your regular workout routine can help you maintain flexibility in the joints without putting too much stress on the bones. These exercises may prevent the disease from limiting your ability to walk and participate in everyday activities. They also improve blood flow throughout the body, which may help the bone heal more quickly.

A physical therapist can also help you alter the way you walk to avoid limping or putting too much stress on the affected joint. This helps ensure that you are able to use the joint without feeling pain for the long term.

The duration of physical therapy varies depending on the location of a lesion and how quickly your body responds to medication and physical therapy. After four to eight weeks, your therapist and physician assess your progress and determine whether additional treatment is required.

The most important thing you can do is have a good ortho , talk to him or her openly and honestly about your condition, your pain, your limitations etc…. together you can work together to find the best treatment plan for you . And also remember if you are unsatisfied you can always get a second opinion and or new ortho.

All content found on this Website, blog,, including: text, images, audio, or other formats were created for informational purposes only.

The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Never disregard professional medical advice or delay in seeking it because of something you have read on this website,blog,page.

If you think you may have a medical emergency, call your doctor, go to the emergency department, or call 911 immediately.

I do not recommend or endorse any specific tests, physicians, products, procedures, opinions, or other information that may be mentioned on here .

Reliance on any information provided by this website , blog is solely at your own risk.

I discuss and educate.

I tell my story.

National Orthopedic Societies By Country

I talk so many people around the world with Avascular Necrosis/ Osteonecrosis so often it’s sad because they struggle to find qualified doctors and surgeons knowledgeable about the disease.

I also here in the USA found it hard to find doctors who are not just educated in avn but really know about it and have a true interest in helping their patients.

The only I have spoke with are listed in my list for USA doctors.

I am working on a world wide list.

Here is also great information on orthopedic societies by country.

Deb

They are in alphabetical order.

National Orthopedic Societies By Country

Argentina

Asociación Argentina de Ortopedia y Traumatología (AAOT)

Australia

Australian Orthopaedic Association (AOA)

Austria

Österreichischen Gesellschaft für Orthopädie und Orthopädische Chirurgie (ÖGO)

Bangladesh

Bangladesh Orthopaedic Society (BOS)

Belgium

Société Royale Belge de Chirurgie Orthopédique et de Traumatologie (SORBCOT)

Belgische Vereniging voor Orthopedie en Traumatologie (BVOT)

Orthoweb

Bolivia

Sociedad Boliviana de Ortopedia y Traumatología (SBOLOT)

Bosnia and Herzegovina

Orthopaedic and Traumatology Surgeons Association of Bosnia and Herzegovina (OTSABH)

Brazil

Sociedade Brasileira de Ortopedia e Traumatologia (SBOT)

Bulgaria

Bulgarian Orthopedics and Traumatology Association (BOTA)

Canada

Canadian Orthopaedic Association (COA)

Chile

Sociedad Chilena de Ortopedia y Traumatología (SCHOT)

Colombia

Sociedad Colombiana de Cirugía Ortopédica y Traumatología (SCCOT)

Croatia

Croatian Orthopaedic and Traumatology Association (HUOT)

Czech Republic

Ceská Společnost pro Ortopedii a Traumatologii (CSOT)

Denmark

Dansk Ortopaedisk Selskab (DOS)

Ecuador

Sociedad Ecuatoriana de Ortopedia y Traumatología (SEOT)

Egypt

Egyptian Orthopaedic Association (EOA)

El Salvador

Asociación Salvadoreña de Ortopedia y Traumatología (ASOT)

Estonia

Estonian Association of Traumatology and Orthopedics (ETOS)

Finland

Finnish Orthopaedic Association (SOY/FOA)

France

Société Française de Chirurgie Orthopédique et Traumatologique (SOFCOT)

Germany

Deutsche Gesellschaft für Orthopädie und Orthopädische Chirurgie (DGOOC)

Berufsverband der Fachärzte für Orthopädie und Unfallchirurgie e. V. (BVOU)

Greece

Hellenic Association of Orthopaedic Surgery and Traumatology

Hong Kong

Hong Kong Orthopaedic Association

Hungary

Magyar Ortopéd Társaság (MOT)

Iceland

Icelandic Orthopedic Society

India

Indian Orthopaedic Association (IOA)

Iran

Iranian Orthopaedic Association (IOA)

Ireland

Irish Orthopaedic Association

Israel

Israel Orthopaedic Association

Italy

Società Italiana di Ortopedia e Traumatologia (SIOT)

Japan

Japanese Orthopaedic Association (JOA)

Jordan

Jordan Orthopedic Association (JOA)

Korea

Korean Orthopaedic Association (KOA)

Kosovo

Kosovo Society of Orthopaedics and Trauma Surgeons (KSOTS)

Lebanon

Lebanese Orthopaedic Association (LOA)

Lithuania

Lithuanian Society of Orthopaedics and Traumatology (LSOT/LOTD)

Luxembourg

Luxembourgian Society of Orthopaedics and Traumatology (SLOT)

Macedonia

Macedonian Association of Orthopaedics and Traumatology (MAOT)

Malaysia

Malaysian Orthopaedic Association (MOA)

Mexico

Sociedad Mexicana de Ortopedia (SMO)

Montenegro

Association of Orthopaedics and Traumatology of Montenegro (AMOT)

Morocco

Société Marocaine de Chirurgie Orthopédique et de Traumatologie (SMACOT)

Netherlands

Dutch Orthopaedic Association (NOV)

New Zealand

New Zealand Orthopaedic Association

Norway

Norsk Ortopedisk Forening (NOF)

Pakistan

Pakistan Orthopaedic Association

Paraguay

Sociedad Paraguaya de Ortopedia y Traumatología (SPOT)

Peru

Sociedad Peruana de Ortopedia y Traumatología (SPOT)

Poland

Polskie Towarzystwo Ortopedyczne i Traumatologiczne (PTOiTr)

Portugal

Sociedade Portuguesa de Ortopedia e Traumatologia (SPOT)

Puerto Rico

Sociedad Puertorriqueña de Ortopedia y Traumatología (SPOT)

Romania

Societatea Romana de Ortopedie si Traumatologie (SOROT)

Russian Federation

Association of Orthopaedists and Traumatologists of the Russian Federation

Saudi Arabia

Saudi Orthopaedic Association

Serbia

Serbian Orthopaedic Trauma Association (SOTA)

Singapore

Singapore Orthopaedic Association (SOA)

Slovakia

Slovenská Ortopedická a Traumatologická Spoločnosť (SOTS)

Slovenia

Slovenian Orthopaedic Society (ZOSZD)

South Africa

African Orthopaedic Association (SAOA)

Spain

Sociedad Española de Cirugía Ortopédica y Traumatología (SECOT)

Sweden

Svensk Ortopedisk Förening (SOF)

Switzerland

Société Suisse d’Orthopédie et de Traumatologie (SSO/SGO)

Taiwan

Taiwan Orthopaedic Association

Thailand

Royal College of Orthopaedic Surgeons of Thailand (RCOST)

Turkey

Turkish Society of Orthopaedics and Traumatology (TOTBID)

United Kingdom

British Orthopaedic Association (BOA)

United States

American Academy of Orthopaedic Surgeons (AAOS)

Uruguay

Sociedad de Ortopedia y Traumatología del Uruguay (SOTU)

Venezuela

Sociedad Venezolana de Cirugía Ortopédica y Traumatología (SVCOT)

Legg-Calve-Perthes Kids Avascular Necrosis

What is Legg-Calvé-Perthes disease?

Legg-Calvé-Perthes disease (LEG-cal-VAY-PER-theez) is a problem in the hip. It is often called Perthes disease.

Legg-Calvé-Perthes disease occurs when blood temporarily stops flowing to the ball (femoral head) at the top of the thighbone that fits into the hip socket. If the bone does not get enough blood, it dies. The bone collapses and becomes flat. As a result, the ball no longer moves smoothly in the hip socket.

Over the course of several months, the blood supply comes back to the bone. New bone cells gradually replace the dead bone. This process may take 2 or 3 years.

The disease can occur in both hips, but usually not at the same time.

Children with Legg-Calvé-Perthes disease may develop arthritis early and lose some movement in their hips.

Legg-Calvé-Perthes disease in children

Although any child can get Perthes disease, boys with the disease outnumber girls 4 to 1. Usually, they are thin, wiry, very active boys who are smaller than others their age.

Perthes disease usually develops when children are between the ages of 4 and 8. But children as young as age 2 and as old as age 12 can develop the disease.

Symptoms

Signs and symptoms of Legg-Calve-Perthes disease include:

• Limping

• Pain or stiffness in the hip, groin, thigh or knee

• Limited range of motion of the hip joint

Legg-Calve-Perthes disease usually involves just one hip. Both hips are affected in some children, usually at different times.

When to see a doctor

Make an appointment with your doctor if your child begins limping or complains of hip, groin or knee pain. If your child has a fever or can’t bear weight on the leg, seek emergency medical care.

Causes

Legg-Calve-Perthes disease occurs when too little blood is supplied to the ball portion of the hip joint (femoral head). Without an adequate blood supply, this bone becomes unstable, and it may break easily and heal poorly. The underlying cause of the temporary reduction in blood flow to the femoral head is still unknown.

Risk factors

Risk factors for Legg-Calve-Perthes disease include:

• Age. Although Legg-Calve-Perthes disease can affect children of nearly any age, it most commonly occurs between ages 4 and 8.

• Your child’s sex. Legg-Calve-Perthes is up to five times more common in boys than in girls.

• Race. White children are more likely to develop the disorder than are black children.

• Family history. In a small number of cases, Legg-Calve-Perthes appears to run in families.

Complications

Children who have had Legg-Calve-Perthes disease are at higher risk of developing hip arthritis in adulthood particularly if the hip joint heals in an abnormal shape

If the hip bones don’t fit together well after healing, this can cause the joint to wear out early. Hip replacement surgery eventually may be required.

In general, children who are diagnosed with Legg-Calve-Perthes after age 6 are more likely to develop hip problems later in life.

The younger the child is, the better the chances for the hip joint healing in a normal, round shape.

Avascular Necrosis – Rare Disease-Disorder

Rare Disease

Approximately 15-20,000 New cases if Avascular Necrosis are diagnosed each year.

Treatment can often help, but this condition can’t be cured.

The earlier the stage of your diagnosis and the sooner you get treatment.

The better the outcome.

A Chronic condition : can last for years or be lifelong

Avascular necrosis is associated with trauma to the bone or joint, clotting disorders,long-term steroid use and drinking too much alcohol.

It’s most common in people between the ages of 30 and 60 and often affects the hip.

Avascular Necrosis can happen in any bone but the most common are

Hip

Knee

Ankle

Shoulder

Early stages of Avascular Necrosis may be symptom-free.

You may not even know you have it until you start to experience pain.

The affected joint may hurt when weight is put on it or even when lying down.

Treatment includes physical therapy, surgery, prp and or stem cell injections and medications.

Avascular Necrosis – Osteonecrosis eBooklet

 

Click link below

 

AVN Awareness Booklet    

To access link on cell press on above link and you will be re-directed to Booklet.

If on computer just click above link.

🌻 Hi, I’m Deborah Andio

I wrote this booklet in 2016  to help patients like myself and their families understand avascular necrosis- osteonecrosis  and give helpful ideas to patients and help our doctors understand the pain we often feel.

My goal is throughout this booklet is to first let you know you are not alone .

Those who also have been diagnosed with avn know exactly how your feeling,scared, afraid, searching for knowledge and resources and coming up with very little.

That’s why I started a support group and wrote this booklet.

Disclaimer

  • This booklet is not intended as a substitute for the medical advice of physicians. The reader should regularly consult a physician in matters relating to his/her health and particularly with respect to any symptoms that may require diagnosis or medical attention.
  • No part of this eBook may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopying, recording or by any information storage and retrieval system, without written permission from the author.
  • The information provided within this eBook is for general informational purposes only.
  • Copyright © protected
  • While I try to keep the information up-to-date and correct, there are no representations or warranties, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the information, products, services, or related graphics contained in this eBook for any purpose. Any use of this information is at your own risk.

I give an actual copy to members of my support group. But many felt the information was so helpful, I wanted to share it with everyone.

I have recently completed a better spell check and next print will have all errors corrected.

No-one can use any contents of this booket words or graphics

 

Supprt Group Link  Avascular Necrosis/ Osteonecrosis Support Int’l

Wishing you all a pain free and relaxing day

God Bless

Debbie

 

ChronicallyGratefulDebla2018© ™️

Debla©2014-2019 ™️

computer

The Journey Begins

Thanks for joining me! Avascular Necrosis is a long crazy road……road

I am adding this specific blog site to dedicate it to all that suffer from avascular necrosis and so they can get education information and resources that may help them along the way.

This site is never intended as medical advice its just to educate it is not to diagnosis

FDA Disclaimer: The advice & statements on this blog have not been evaluated by the Food & Drug Administration. Any information on this blog is not intended to diagnose, treat, cure, or prevent any disease.

Copyright

No part of this publication shall be reproduced, transmitted, or sold in whole or in part in any form, without the prior written consent of the author. Any content on my blog whether it be pictures or text, may not be republished or distributed, for financial gain or not, without written permission of the author.

Always talk to your primary care doctor.

If you have Avascular Necrosis and need a great support group join – you are required to answer a few questions

https://www.facebook.com/groups/DeadBoneDiseaseAVN 

Good company in a journey makes the way seem shorter. — Izaak Walton