Ebooklet -Avascular Necrosis-2016

Legg-Calve-Perthes Kids Avascular Necrosis

What is Legg-Calvé-Perthes disease?

Legg-Calvé-Perthes disease (LEG-cal-VAY-PER-theez) is a problem in the hip. It is often called Perthes disease.

Legg-Calvé-Perthes disease occurs when blood temporarily stops flowing to the ball (femoral head) at the top of the thighbone that fits into the hip socket. If the bone does not get enough blood, it dies. The bone collapses and becomes flat. As a result, the ball no longer moves smoothly in the hip socket.

Over the course of several months, the blood supply comes back to the bone. New bone cells gradually replace the dead bone. This process may take 2 or 3 years.

The disease can occur in both hips, but usually not at the same time.

Children with Legg-Calvé-Perthes disease may develop arthritis early and lose some movement in their hips.

Legg-Calvé-Perthes disease in children

Although any child can get Perthes disease, boys with the disease outnumber girls 4 to 1. Usually, they are thin, wiry, very active boys who are smaller than others their age.

Perthes disease usually develops when children are between the ages of 4 and 8. But children as young as age 2 and as old as age 12 can develop the disease.

Symptoms

Signs and symptoms of Legg-Calve-Perthes disease include:

• Limping

• Pain or stiffness in the hip, groin, thigh or knee

• Limited range of motion of the hip joint

Legg-Calve-Perthes disease usually involves just one hip. Both hips are affected in some children, usually at different times.

When to see a doctor

Make an appointment with your doctor if your child begins limping or complains of hip, groin or knee pain. If your child has a fever or can’t bear weight on the leg, seek emergency medical care.

Causes

Legg-Calve-Perthes disease occurs when too little blood is supplied to the ball portion of the hip joint (femoral head). Without an adequate blood supply, this bone becomes unstable, and it may break easily and heal poorly. The underlying cause of the temporary reduction in blood flow to the femoral head is still unknown.

Risk factors

Risk factors for Legg-Calve-Perthes disease include:

• Age. Although Legg-Calve-Perthes disease can affect children of nearly any age, it most commonly occurs between ages 4 and 8.

• Your child’s sex. Legg-Calve-Perthes is up to five times more common in boys than in girls.

• Race. White children are more likely to develop the disorder than are black children.

• Family history. In a small number of cases, Legg-Calve-Perthes appears to run in families.

Complications

Children who have had Legg-Calve-Perthes disease are at higher risk of developing hip arthritis in adulthood particularly if the hip joint heals in an abnormal shape

If the hip bones don’t fit together well after healing, this can cause the joint to wear out early. Hip replacement surgery eventually may be required.

In general, children who are diagnosed with Legg-Calve-Perthes after age 6 are more likely to develop hip problems later in life.

The younger the child is, the better the chances for the hip joint healing in a normal, round shape.

Avascular Necrosis – Rare Disease-Disorder©

Rare Disease

Approximately 15-20,000 New cases if Avascular Necrosis are diagnosed each year.

Treatment can often help, but this condition can’t be cured.

The earlier the stage of your diagnosis and the sooner you get treatment.

The better the outcome.

A Chronic condition : can last for years or be lifelong

Avascular necrosis is associated with trauma to the bone or joint, clotting disorders,long-term steroid use and drinking too much alcohol.

It’s most common in people between the ages of 30 and 60 and often affects the hip.

Avascular Necrosis can happen in any bone but the most common are

Hip

Knee

Ankle

Shoulder

Early stages of Avascular Necrosis may be symptom-free.

You may not even know you have it until you start to experience pain.

The affected joint may hurt when weight is put on it or even when lying down.

Treatment includes physical therapy, surgery, prp and or stem cell injections and medications.

 I am working every week writing to Senators asking for an awareness day.

I know they are busy but I am confident it will happen eventually.

I write them because when you have a rare condition, there isn’t much research being conducted and sometimes I feel like myself and my group are the only ones raising awareness.

So if I have to be the one to plow through and get proclamations in every state.

Let the writing begin

God Bless you all and wishing everyone a pain free day

Deb Andio

©Debla2018 text and art 2014-2019

Avascular Necrosis – Osteonecrosis eBooklet © ™️®️

 

Click link below

 

AVN Awareness Booklet    

To access link on cell press on above link and you will be re-directed to Booklet.

If on computer just click above link.

🌻 Hi, I’m Deborah Andio

I wrote this booklet in 2016  to help patients like myself and their families understand avascular necrosis- osteonecrosis  and give helpful ideas to patients and help our doctors understand the pain we often feel.

My goal is throughout this booklet is to first let you know you are not alone .

Those who also have been diagnosed with avn know exactly how your feeling,scared, afraid, searching for knowledge and resources and coming up with very little.

That’s why I started a support group and wrote this booklet.

Disclaimer

  • This booklet is not intended as a substitute for the medical advice of physicians. The reader should regularly consult a physician in matters relating to his/her health and particularly with respect to any symptoms that may require diagnosis or medical attention.
  • No part of this eBook may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopying, recording or by any information storage and retrieval system, without written permission from the author.
  • The information provided within this eBook is for general informational purposes only.
  • Copyright © protected
  • While I try to keep the information up-to-date and correct, there are no representations or warranties, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the information, products, services, or related graphics contained in this eBook for any purpose. Any use of this information is at your own risk.

I give an actual copy to members of my support group. But many felt the information was so helpful, I wanted to share it with everyone.

I have recently completed a better spell check and next print will have all errors corrected.

No-one can use any contents of this booket words or graphics

Also booklet will be updated every 2 years

2014 check

2016

2018

2020

I am continually writing to our Senators state by state asking for an awareness day proclamation.

So AVN-ON can get the recognition it deserves.

 

Supprt Group Link  Avascular Necrosis/ Osteonecrosis Support Int’l

Wishing you all a pain free and relaxingI am writingev

God Bless

Debbie

 

ChronicallyGratefulDebla2018© ™️

Debla©2014-2019 ™️

 

All rights reserved. Thia booklet on line or in print may not be reproduced in any form, stored in any retrieval system, or transmitted in any form by any means—electronic, mechanical, photocopy, recording, or otherwise—without prior written permission of the publisher, except as provided by United States of America copyright law. For permission requests, write to the author on this web site.

©Debla2014

 

computer

The Journey Begins©

Thanks for joining me! Avascular Necrosis is a long crazy road……road

I am adding this specific blog site to dedicate it to all that suffer from avascular necrosis and so they can get education information and resources that may help them along the way.

This site is never intended as medical advice its just to educate it is not to diagnosis

FDA Disclaimer: The advice & statements on this blog have not been evaluated by the Food & Drug Administration. Any information on this blog is not intended to diagnose, treat, cure, or prevent any disease.

Copyright

No part of this publication shall be reproduced, transmitted, or sold in whole or in part in any form, without the prior written consent of the author. Any content on my blog whether it be pictures or text, may not be republished or distributed, for financial gain or not, without written permission of the author.

Always talk to your primary care doctor.

If you have Avascular Necrosis and need a great support group join – you are required to answer a few questions

https://www.facebook.com/groups/DeadBoneDiseaseAVN 

Good company in a journey makes the way seem shorter. — Izaak Walton

I forgive but won’t forget

I forgive you….For showing me who you really are.

On one hand, I get it. Who would want to deal with this? Who would want a friend that plans to go to lunch then changes their mind because the pain in their body is just to much that day.

Who would want to hang out with a friend who’s bones always hurt and was afraid to make plans , because they didn’t want to let you down if their body was in pain again.

If you don’t want to talk to me for a while to focus on your own issues, or just to unwind and be alone for a while, you are entirely valid and you don’t have to justify that to me. Trust me I understand

On the other hand, some of you really hurt my feelings. When you needed me before I had my health issues I was always there for you. I’d pick you up late at night if you drank to much, I’d take you shopping when your car was in the shop. Make you soup when you were sick.

You hurt me by leaving me when I needed you most.

You hurt me by making me feel like my condition is to much for you to bear than it is for to live with.

You hurt my feelings by making me feel alone, different and excluded when all I wanted was to feel included and just the same as everybody else.

Maybe I should be thanking you instead of feeling a bit sad.

I thank those of you who went about leaving with human decency, for being honest with me, and for admitting that your own issues are the priority for you, as they should be.

I thank you for taking time away from me to focus on yourself and work on your own health. I thank those of you who went about it in a rude way for you revealed your true colors to me, and I feel relieved I don’t have to waste each other’s time.

Finally, I thank those of you who have never left. Those of you who are still here, calling me , asking me to get coffee etc….