Blog Posts and Ebooklet

Avascular Necrosis – Rare Disease-Disorder©

Rare Disease

Approximately 15-20,000 New cases if Avascular Necrosis are diagnosed each year.

Treatment can often help, but this condition can’t be cured.

The earlier the stage of your diagnosis and the sooner you get treatment.

The better the outcome.

A Chronic condition : can last for years or be lifelong

Avascular necrosis is associated with trauma to the bone or joint, clotting disorders,long-term steroid use and drinking too much alcohol.

It’s most common in people between the ages of 30 and 60 and often affects the hip.

Avascular Necrosis can happen in any bone but the most common are

Hip

Knee

Ankle

Shoulder

Early stages of Avascular Necrosis may be symptom-free.

You may not even know you have it until you start to experience pain.

The affected joint may hurt when weight is put on it or even when lying down.

Treatment includes physical therapy, surgery, prp and or stem cell injections and medications.

 I am working every week writing to Senators asking for an awareness day.

I know they are busy but I am confident it will happen eventually.

I write them because when you have a rare condition, there isn’t much research being conducted and sometimes I feel like myself and my group are the only ones raising awareness.

So if I have to be the one to plow through and get proclamations in every state.

Let the writing begin

God Bless you all and wishing everyone a pain free day

Deb Andio

©Debla2018 text and art 2014-2019

Avascular Necrosis – Osteonecrosis eBooklet © ™️®️

 

Click link below

 

AVN Awareness Booklet    

To access link on cell press on above link and you will be re-directed to Booklet.

If on computer just click above link.

🌻 Hi, I’m Deborah Andio

I wrote this booklet in 2016  to help patients like myself and their families understand avascular necrosis- osteonecrosis  and give helpful ideas to patients and help our doctors understand the pain we often feel.

My goal is throughout this booklet is to first let you know you are not alone .

Those who also have been diagnosed with avn know exactly how your feeling,scared, afraid, searching for knowledge and resources and coming up with very little.

That’s why I started a support group and wrote this booklet.

Disclaimer

  • This booklet is not intended as a substitute for the medical advice of physicians. The reader should regularly consult a physician in matters relating to his/her health and particularly with respect to any symptoms that may require diagnosis or medical attention.
  • No part of this eBook may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopying, recording or by any information storage and retrieval system, without written permission from the author.
  • The information provided within this eBook is for general informational purposes only.
  • Copyright © protected
  • While I try to keep the information up-to-date and correct, there are no representations or warranties, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the information, products, services, or related graphics contained in this eBook for any purpose. Any use of this information is at your own risk.

I give an actual copy to members of my support group. But many felt the information was so helpful, I wanted to share it with everyone.

I have recently completed a better spell check and next print will have all errors corrected.

No-one can use any contents of this booket words or graphics

Also booklet will be updated every 2 years

2014 check

2016

2018

2020

I am continually writing to our Senators state by state asking for an awareness day proclamation.

So AVN-ON can get the recognition it deserves.

 

Supprt Group Link  Avascular Necrosis/ Osteonecrosis Support Int’l

Wishing you all a pain free and relaxingI am

God Bless

Debbie

 

ChronicallyGratefulDebla2018© ™️

Debla©2014-2019 ™️

 

All rights reserved. Thia booklet on line or in print may not be reproduced in any form, stored in any retrieval system, or transmitted in any form by any means—electronic, mechanical, photocopy, recording, or otherwise—without prior written permission of the publisher, except as provided by United States of America copyright law. For permission requests, write to the author on this web site.

©Debla2014

 

computer

The Journey Begins©

Thanks for joining me! Avascular Necrosis is a long crazy road……road

I am adding this specific blog site to dedicate it to all that suffer from avascular necrosis and so they can get education information and resources that may help them along the way.

This site is never intended as medical advice its just to educate it is not to diagnosis

FDA Disclaimer: The advice & statements on this blog have not been evaluated by the Food & Drug Administration. Any information on this blog is not intended to diagnose, treat, cure, or prevent any disease.

Copyright

No part of this publication shall be reproduced, transmitted, or sold in whole or in part in any form, without the prior written consent of the author. Any content on my blog whether it be pictures or text, may not be republished or distributed, for financial gain or not, without written permission of the author.

Always talk to your primary care doctor.

If you have Avascular Necrosis and need a great support group join – you are required to answer a few questions

https://www.facebook.com/groups/DeadBoneDiseaseAVN 

Good company in a journey makes the way seem shorter. — Izaak Walton

I forgive but won’t forget

I forgive you….For showing me who you really are.

On one hand, I get it. Who would want to deal with this? Who would want a friend that plans to go to lunch then changes their mind because the pain in their body is just to much that day.

Who would want to hang out with a friend who’s bones always hurt and was afraid to make plans , because they didn’t want to let you down if their body was in pain again.

If you don’t want to talk to me for a while to focus on your own issues, or just to unwind and be alone for a while, you are entirely valid and you don’t have to justify that to me. Trust me I understand

On the other hand, some of you really hurt my feelings. When you needed me before I had my health issues I was always there for you. I’d pick you up late at night if you drank to much, I’d take you shopping when your car was in the shop. Make you soup when you were sick.

You hurt me by leaving me when I needed you most.

You hurt me by making me feel like my condition is to much for you to bear than it is for to live with.

You hurt my feelings by making me feel alone, different and excluded when all I wanted was to feel included and just the same as everybody else.

Maybe I should be thanking you instead of feeling a bit sad.

I thank those of you who went about leaving with human decency, for being honest with me, and for admitting that your own issues are the priority for you, as they should be.

I thank you for taking time away from me to focus on yourself and work on your own health. I thank those of you who went about it in a rude way for you revealed your true colors to me, and I feel relieved I don’t have to waste each other’s time.

Finally, I thank those of you who have never left. Those of you who are still here, calling me , asking me to get coffee etc….