Avascular Necrosis-Osteonecrosis Education and Resources
The body always knows what to do to heal itself. The challenge is listening and doing what your body needs.
I was diagnosed with Osteoarthritis in 1997ish, Avascular Necrosis aka Osteonecrosis in my knee in 2014 and Factor V Leiden hetero, and Spondylolisthesis 2005ish
Health Advocate-Health Activist-World Changer
Love photography, cooking, hiking, walking ,traveling and learning to live a new normal since my diagnosis.
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Support Group Avascular Necrosis/Osteonecrosis Support Int’l
Awareness for Avascular Necrosis & Other Conditions of The Bone and Joints
Avascular Necrosis Awareness Day November 29 – working with elected officials to get this recognized in all states
Avascular Necrosis-Osteonecrosis Knowledge and Education
Below is a link to my connect group and is always held in eastern standard time.
What is a Live Yes! Connect Group?
A Live Yes Connect group offers local connections, education and empowerment. Adults living with arthritis from our local community come together for professional- and volunteer-led sessions on a variety of topics, as well as fun group activities.
We offer a place of understanding and encouragement for both people living with arthritis and their loved ones. Group participants become self-advocates, develop self-management skills and learn how to not just survive life with arthritis but to thrive.
Saturday October 8th 2022 at 10 AM ET until 11:30am
Food is medicine – that’s the mantra of culinary medicine. The first line of defense against chronic disease and inflammation could be your dinner plate. The science of culinary medicine combats illnesses like chronic inflammation and pain, heart disease, cancer and diabetes with recipes and meals designed to help the body heal.
Chef Jim Perko was Drs. Oz & Roizen’s YouBeauty.com’s culinary expert columnist for 4 years, creator of hundreds of delicious and healthy recipes, and is a co-author with Michael F. Roizen. M.D., and Michael Crupain M.D., M.P.H., in the groundbreaking lifestyle guide What To Eat When Cookbook.
Chef Jim Perko has been a part of Cleveland Clinic for over 36 years. During his time at Cleveland Clinic, Chef Jim has collaborated with numerous physicians to develop the first evidence-based, technique-driven culinary medicine initiatives for the Cleveland Clinic.
He has developed culinary curricula and recipes for six patient programs including Culinary Medicine for Chronic Disease. He is the creator and provider of the first Cleveland Clinic Culinary Medicine patient consult program to help patients execute prescribed nutritional plans and find true enjoyment in their new and tailored culinary plan.
We will be discussing easy, budget friendly meals to help inflammation and ease pain. Chef Jim’s passion is to implement culinary medicine that’s evidence-based in both clinical and culinary disciplines to educate how foods can be powerful medicine without compromising the flavor of your meals or your health. Remember anything you eat you are either feeding or fighting disease
I lived for 20 years with osteoarthritis but nothing was as scary and painful as my Osteonecrosis diagnosis. I gained a lot of weight because I. Oils no longer work and I won’t lie I stuffed myself with food to comfort myself. I went up to 293 lbs. I can’t believe I let myself get that big. Something had to change because I was too fat for a joint replacement and honestly I didn’t want one. So I had to do something, so I changed the way I ate I noticed a great improvement. People thought I was crazy but I had less pain.
I didn’t quit everything cold Turkey. I did stop smoking cold Turkey best decision I ever made.
I added more plants raw and cooked and lessened the meat intake. I started out having meatless Monday Wednesday and Friday soon it was meatless Saturday also.
I cut out 85% of all the crackers and cheese puffs all the stuff that we love but know it’s not real food. When I wanted chips I made a baked potato or a baked sweet potato. When I wanted chips and dip I made my own bean dip and hummus and dipped peppers, celery and sometimes a few crackers. I wasn’t perfect but I really began eating to live not living to eat.
My cholesterol dropped to fantastic numbers I went from total cholesterol of 210 to a total of 172 in a matter of months then down to 158. My good cholesterol went from 38 to 60. So I was on the right path. It wasn’t easy, it still isn’t easy because let’s face it junk food is every place. My next post I will post about how to eat healthy at fast food restaurants and yummy food fast that’s healthy!!
I became a flexitarian meaning I ate mostly plant based and once a week ate chicken and fish. Backed or grilled .
Good bye to greasy fried food, I also cut out 80 percent of processed junk .
Stopped all cola and sugary drinks I never was much of a pop drinker.
Many thought this was crazy and would not do much. But it did.
Then in 2019 there was a study that also confirmed similar findings .
I got off blood pressure medication and my bones didn’t feel like a tourniquet around them.
I also with the ok if my Ortho started taking Cureamed curcumin 375 1-2 times a day for 2 weeks then just once a day. It seemed to help my pain and thinned my blood some. So if you take blood thinners don’t just try this.
Always talk to your doctor before doing anything new.
Fast forward to 2022 thank God still no joint replacement (knee)
Below is some info on poor diet and obesity is not good for Osteonecrosis. Actually obesity and poor diet cause our body to have more inflammation and that gives us more pain. And can lead to many things.
So see a nutritionist get your diet in check and if you are a compulsive overeater go to some OA meetings , see a counselor what ever it takes to reclaim your health.
I lost about 95 lbs regained 16 during covid lock down. But back on track in May 2022 I am hoping by May 2023 I am at goal weight of 145 -150 lbs. it’s not easy and the older I get ( soon to be 60) the harder it is to lose especially when you have bone and joint issues.
But trying and still no joint replacement.
If you have a problem with food like binge eating, or just an unhealthy relationship with it check out https://oa.org/
I think with the new Pandemic and all the new strains emerging patients, physicians surgeons and respiratory specialists should be paying close attention because I feel that there will be a sudden influx of men women and some children developing Osteonecrosis because of the treatment of Novel Coronavirus aka Covid19.
It seems that I see far more studies and concern over individuals getting osteoporosis that they overlook Osteonecrosis causes and complications.
And I really think it’s time we not only study and examine the effects of corticosteroids on the bones but we really need to start warning patients verbally.
This is a really good app, it’s new released by the arthritis foundation just a couple weeks ago.
It’s a great way to connect with others that understand what it’s like to live with pain.
It provides tips to help ease the stress and anxiety that come with chronic pain.
Discusses various treatments from diet to meditation, to acupuncture to prp and stem cell injections to joint replacement .
The app tries to help those living in pain have options to have a better quality of life. It helps track your pain so you can discuss this with your doctor or surgeon.
It also gives you ways to register to get connected with National and at Some point Local connect groups in your area . All this is free. Ypu can even link to the podcast.
I am the Facilitator for the Boardman Ohio LIVE Yes Connect. I try to provide support, and patient education via information as well as guest speakers as well as group interaction.
Right now we are on zoom, but will be at some point back face to face as well as remain on zoom also. I think zoom is good because you can attend right from your hone or work or pulled over in your can.
That’s why I volunteer for the Arthritis Foundation, they provide so much to so many.
Give it a try…. one of the best apps I have.
If you use it. Use the same email as your arthritis.org email for Live Yes Connect. That way you can be up to date and linked to all great things the AF has to offer in one easy app.
Osteonecrosis is a well-recognized complication associated with organ transplantation.
It is a pathological condition characterized by the death of the cellular constituents of bone and marrow. The process of aseptic bone necrosis is associated with glucocorticoid use, and the mechanism by which glucocorticoids initiate the pathologic process has recently been elucidated.
Rates are particularly high in patients with systemic lupus erythematosus. The incidence of osteonecrosis also increases in patients on dialysis.
The exact prevalence of osteonecrosis after organ transplantation is, however, difficult to assess as many cases are clinically silent.
The most common symptom of osteonecrosis is hip pain that is usually deep in nature, localized to the groin with occasional radiation down the thigh to the knee.
Symptoms are usually exacerbated by physical activity and weight bearing and relieved by rest. In the late stages of osteonecrosis, pain is often present at rest, and patients may develop a limp, as they are no longer able to bear weight on the affected joint.
Osteonecrosis affecting the bone beneath a weight-bearing joint surface is associated with a significant risk of developing a subarticular fracture, which appears to initiate the symptoms.
Optimizing the dose of glucocorticoids has led to a significant reduction in the incidence of osteonecrosis post-transplantation. Substituting these agents entirely with calcineurin inhibitors may decrease this complication of the transplantation process even further. Early diagnosis using magnetic resonance imaging is essential for the success of available surgical interventions
Being an advocate for bone and joint pain and personally living with osteoarthritis osteonecrosis and spondylolisthesis pain .
I saw our community struggle in new and ways besides living and dealing with daily pain.
People suddenly couldn’t access routine care because of lockdowns, fear and added anxiety.
They became more isolated than ever before. They and their family members faced job losses and financial hardship.
As an advocate for arthritis and a facilitator for my local LIVE YES Connect Group, I had to cancel or postpone in-person programs and events.
But on the plus side we went virtual on Zoom
Some members and their families faced added strain, whether dealing with virtual school or safety concerns for loved ones in nursing homes.
It’s a year most are happy to see come to an end.
But as a person with pain, I am always compelled to find silver linings. Even in the mist of challenging of times.
In 2020, I got to travel to Washington D.C participate in a focus group and then speak on Capital Hill.
I met some fantastic people from our state representatives to other leaders and advocates who work so hard to create a strong support system for so many causes and conditions.
I got to stay in a great city and tour the beautiful historical city of Washington D.C
We made great strides in accessibility, as health care system finally embraced telehealth and more companies allowed remote work.
Many disabled now gave hope to possibly getting a part time job working from home now because we see it is doable.
We seen a President work tirelessly to get pharmaceutical companies to create a vaccine quickly that will be safe for the USA and world.
We gave witnessed the power of science and innovation with the development of promising treatments and vaccines.
We saw our neighbors and communities come together to support one another in their time of need.
Despite the news only showing negativity there was a lot of positive happening.
2020 shown how resilient we are. And to never lose faith. Be grateful for everyday.
I don’t know what 2021 will bring;
I’m hoping it will be a fantastic year.
I just want to Thank you for your support, and following me on IG, Blog, and all social media platforms I promise to bring you current and uplifting information in 2021 and I wish you all a safe, healthy, prosperous and happy new year