All things arthritis
Since late stage Osteonecrosis leads to severe osteoarthritis I feel they are under the same umbrella although different in some ways and the same in other ways.
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Tag: Joints
Avascular Necrosis-Osteonecrosis Awareness Day 2021
Hard to believe another awareness day has arrived.
It’s been a struggle and challenge to get all 50 states to issue a proclamation: but being persistent is becoming rewarding. We now have about 1/2 the USA on board as 29 November being AVN-ON
To all those living with Osteonecrosis like myself, know I will not give up until every state has issued the proclamation.
We live with pain and uncertainty every day. But I assure you I will not give up until it’s recognized in every state.
Happy AVN-ON Awareness Day.
Wish you all a pain free day
Osteonecrosis and Organ transplant
Osteonecrosis is a well-recognized complication associated with organ transplantation.
It is a pathological condition characterized by the death of the cellular constituents of bone and marrow. The process of aseptic bone necrosis is associated with glucocorticoid use, and the mechanism by which glucocorticoids initiate the pathologic process has recently been elucidated.
Rates are particularly high in patients with systemic lupus erythematosus. The incidence of osteonecrosis also increases in patients on dialysis.
The exact prevalence of osteonecrosis after organ transplantation is, however, difficult to assess as many cases are clinically silent.
The most common symptom of osteonecrosis is hip pain that is usually deep in nature, localized to the groin with occasional radiation down the thigh to the knee.
Symptoms are usually exacerbated by physical activity and weight bearing and relieved by rest. In the late stages of osteonecrosis, pain is often present at rest, and patients may develop a limp, as they are no longer able to bear weight on the affected joint.
Osteonecrosis affecting the bone beneath a weight-bearing joint surface is associated with a significant risk of developing a subarticular fracture, which appears to initiate the symptoms.
Optimizing the dose of glucocorticoids has led to a significant reduction in the incidence of osteonecrosis post-transplantation. Substituting these agents entirely with calcineurin inhibitors may decrease this complication of the transplantation process even further. Early diagnosis using magnetic resonance imaging is essential for the success of available surgical interventions
Reference: https://www.sciencedirect.com/science/article/pii/B9780121835026500213
https://online.boneandjoint.org.uk/doi/full/10.1302/0301-620x.89b12.19400?journalCode=bjj&
Happy New Year 2021
Out with the old and in with the new
Being an advocate for bone and joint pain and personally living with osteoarthritis osteonecrosis and spondylolisthesis pain .
I saw our community struggle in new and ways besides living and dealing with daily pain.
People suddenly couldn’t access routine care because of lockdowns, fear and added anxiety.
They became more isolated than ever before. They and their family members faced job losses and financial hardship.
As an advocate for arthritis and a facilitator for my local LIVE YES Connect Group, I had to cancel or postpone in-person programs and events.
But on the plus side we went virtual on Zoom
Some members and their families faced added strain, whether dealing with virtual school or safety concerns for loved ones in nursing homes.
It’s a year most are happy to see come to an end.
But as a person with pain, I am always compelled to find silver linings. Even in the mist of challenging of times.
In 2020, I got to travel to Washington D.C participate in a focus group and then speak on Capital Hill.
I met some fantastic people from our state representatives to other leaders and advocates who work so hard to create a strong support system for so many causes and conditions.
I got to stay in a great city and tour the beautiful historical city of Washington D.C
We made great strides in accessibility, as health care system finally embraced telehealth and more companies allowed remote work.
Many disabled now gave hope to possibly getting a part time job working from home now because we see it is doable.
We seen a President work tirelessly to get pharmaceutical companies to create a vaccine quickly that will be safe for the USA and world.
We gave witnessed the power of science and innovation with the development of promising treatments and vaccines.
We saw our neighbors and communities come together to support one another in their time of need.
Despite the news only showing negativity there was a lot of positive happening.
2020 shown how resilient we are. And to never lose faith. Be grateful for everyday.
I don’t know what 2021 will bring;
I’m hoping it will be a fantastic year.
I just want to Thank you for your support, and following me on IG, Blog, and all social media platforms I promise to bring you current and uplifting information in 2021 and I wish you all a safe, healthy, prosperous and happy new year
Awareness Day For Avascular Necrosis- Osteonecrosis
Several states have officially proclaimed today as Osteonecrosis awareness day this past year a few more states came on the awareness train. And by next year God willing all 50 state’s as well as the US Virgin Islands and Puerto Rico will as well.
I will post the entire list later
But for now – Below are some posts and info
https://avascularnecrosiseducation.com/2020/05/24/avascular-necrosis-mask/amp/
Today is Avascular Necrosis Osteonecrosis Awareness Day
Thank You Arizona
The good news keeps rolling in
Rare Disease Day is February 29 usually 28 on non leap years.
So as you know I have been working very hard on November 29 being National – Avascular Necrosis Osteonecrosis awareness day and all states have come on board so far but still waiting to hear from maybe 10 states.
They are doing all they can. And I am so pleased many states have issues proclamations for November 29 and many still are in the process.
Today The State of Arizona sent a proclamation for rare disease awareness we got the entire week February 20-27
And they will also be recognizing November 29
So blessed.
Hard work pays off
Thank you State of Arizona
Deb Andio
Founder Avascular Necrosis Osteonecrosis Support Int’l
#Osteonecrisis #AvascularNecrosis
Radionuclide bone scan to diagnose or confirm Avascular Necrosis-Osteonecrosis
Radionuclide bone scan. This nuclear imaging technique uses a very small amount of radioactive material, which is injected into the blood to be detected by a scanner. This test shows blood flow to the bone and cell activity within the bone.
Overview
A bone scan is a nuclear imaging test that helps diagnose and track several types of bone disease. Your doctor may order a bone scan if you have unexplained skeletal pain, a bone infection or a bone injury that can’t be seen on a standard X-ray.
Why it’s done
Images of bone scans depicting hot spots
Hot spots
If you have unexplained bone pain, a bone scan might help determine the cause. The test is very sensitive to any difference in bone metabolism. The ability to scan the entire skeleton makes a bone scan very helpful in diagnosing a wide range of bone disorders, including:
Fractures
Arthritis
Paget’s disease of bone
Cancer originating in bone
Cancer that has metastasized to bone from a different site
Infection of the joints, joint replacements or bones (osteomyelitis)
Impaired blood supply to bones or death of bone tissue (avascular necrosis)
Thank You Alabama
We are moving along state by state
Alabama is giving us for rare disease awareness the week of February 20,2020 to February 27, 2020 as Avascular Necrosis Osteonecrosis Awareness Week!!!
And on November 29 Avascular Necrosis Osteonecrosis Awareness Day!!
Another Day Another Victory
Awareness has been good many are responding making Avascular Necrosis Osteonecrosis Awareness Day one step closer to national awareness
Thanks to
Congressman Tim Ryan Ohio who sent me this today
And thanks again to
Mayor Jamael Tito Brown – Youngstown Ohio
And
Senator Mike Rulli – Ohio
Who sent me awareness proclamations last week.
Its happening one state at a time.
I just heard from 10 states that they also will be supply this.
Life is always good but this week have been fantastic
Scroll on other posts to see other proclamations
Link to eBooklet Avascular Necrosis Booklet by Deborah L. Andio
Avascular Necrosis-Osteonecrosis Education and Resources 