I maybe combining this site to my main blog at https://chronicallygratefuldebla.com/
Please join me over there as I am hoping to have the transition completed by May31,2023
Lots of content to move.
Thanks

I maybe combining this site to my main blog at https://chronicallygratefuldebla.com/
Please join me over there as I am hoping to have the transition completed by May31,2023
Lots of content to move.
Thanks
All things arthritis
Since late stage Osteonecrosis leads to severe osteoarthritis I feel they are under the same umbrella although different in some ways and the same in other ways.
Link to join The Clubhouse New spot
I lived for 20 years with osteoarthritis but nothing was as scary and painful as my Osteonecrosis diagnosis. I gained a lot of weight because I. Oils no longer work and I won’t lie I stuffed myself with food to comfort myself. I went up to 293 lbs. I can’t believe I let myself get that big. Something had to change because I was too fat for a joint replacement and honestly I didn’t want one. So I had to do something, so I changed the way I ate I noticed a great improvement. People thought I was crazy but I had less pain.
I didn’t quit everything cold Turkey. I did stop smoking cold Turkey best decision I ever made.
I added more plants raw and cooked and lessened the meat intake. I started out having meatless Monday Wednesday and Friday soon it was meatless Saturday also.
I cut out 85% of all the crackers and cheese puffs all the stuff that we love but know it’s not real food. When I wanted chips I made a baked potato or a baked sweet potato. When I wanted chips and dip I made my own bean dip and hummus and dipped peppers, celery and sometimes a few crackers. I wasn’t perfect but I really began eating to live not living to eat.
My cholesterol dropped to fantastic numbers I went from total cholesterol of 210 to a total of 172 in a matter of months then down to 158. My good cholesterol went from 38 to 60. So I was on the right path. It wasn’t easy, it still isn’t easy because let’s face it junk food is every place. My next post I will post about how to eat healthy at fast food restaurants and yummy food fast that’s healthy!!
I became a flexitarian meaning I ate mostly plant based and once a week ate chicken and fish. Backed or grilled .
Good bye to greasy fried food, I also cut out 80 percent of processed junk .
Stopped all cola and sugary drinks I never was much of a pop drinker.
Many thought this was crazy and would not do much. But it did.
Then in 2019 there was a study that also confirmed similar findings .
I got off blood pressure medication and my bones didn’t feel like a tourniquet around them.
I also with the ok if my Ortho started taking Cureamed curcumin 375 1-2 times a day for 2 weeks then just once a day. It seemed to help my pain and thinned my blood some. So if you take blood thinners don’t just try this.
Always talk to your doctor before doing anything new.
Fast forward to 2022 thank God still no joint replacement (knee)
Below is some info on poor diet and obesity is not good for Osteonecrosis. Actually obesity and poor diet cause our body to have more inflammation and that gives us more pain. And can lead to many things.
So see a nutritionist get your diet in check and if you are a compulsive overeater go to some OA meetings , see a counselor what ever it takes to reclaim your health.
I lost about 95 lbs regained 16 during covid lock down. But back on track in May 2022 I am hoping by May 2023 I am at goal weight of 145 -150 lbs. it’s not easy and the older I get ( soon to be 60) the harder it is to lose especially when you have bone and joint issues.
But trying and still no joint replacement.
If you have a problem with food like binge eating, or just an unhealthy relationship with it check out https://oa.org/
See link on study below.
Click to access 1100002678220.pdf
Hard to believe another awareness day has arrived.
It’s been a struggle and challenge to get all 50 states to issue a proclamation: but being persistent is becoming rewarding. We now have about 1/2 the USA on board as 29 November being AVN-ON
To all those living with Osteonecrosis like myself, know I will not give up until every state has issued the proclamation.
We live with pain and uncertainty every day. But I assure you I will not give up until it’s recognized in every state.
Happy AVN-ON Awareness Day.
Wish you all a pain free day
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Osteonecrosis is a well-recognized complication associated with organ transplantation.
It is a pathological condition characterized by the death of the cellular constituents of bone and marrow. The process of aseptic bone necrosis is associated with glucocorticoid use, and the mechanism by which glucocorticoids initiate the pathologic process has recently been elucidated.
Rates are particularly high in patients with systemic lupus erythematosus. The incidence of osteonecrosis also increases in patients on dialysis.
The exact prevalence of osteonecrosis after organ transplantation is, however, difficult to assess as many cases are clinically silent.
The most common symptom of osteonecrosis is hip pain that is usually deep in nature, localized to the groin with occasional radiation down the thigh to the knee.
Symptoms are usually exacerbated by physical activity and weight bearing and relieved by rest. In the late stages of osteonecrosis, pain is often present at rest, and patients may develop a limp, as they are no longer able to bear weight on the affected joint.
Osteonecrosis affecting the bone beneath a weight-bearing joint surface is associated with a significant risk of developing a subarticular fracture, which appears to initiate the symptoms.
Optimizing the dose of glucocorticoids has led to a significant reduction in the incidence of osteonecrosis post-transplantation. Substituting these agents entirely with calcineurin inhibitors may decrease this complication of the transplantation process even further. Early diagnosis using magnetic resonance imaging is essential for the success of available surgical interventions
Reference: https://www.sciencedirect.com/science/article/pii/B9780121835026500213
https://online.boneandjoint.org.uk/doi/full/10.1302/0301-620x.89b12.19400?journalCode=bjj&
Being an advocate for bone and joint pain and personally living with osteoarthritis osteonecrosis and spondylolisthesis pain .
I saw our community struggle in new and ways besides living and dealing with daily pain.
People suddenly couldn’t access routine care because of lockdowns, fear and added anxiety.
They became more isolated than ever before. They and their family members faced job losses and financial hardship.
As an advocate for arthritis and a facilitator for my local LIVE YES Connect Group, I had to cancel or postpone in-person programs and events.
But on the plus side we went virtual on Zoom
Some members and their families faced added strain, whether dealing with virtual school or safety concerns for loved ones in nursing homes.
It’s a year most are happy to see come to an end.
But as a person with pain, I am always compelled to find silver linings. Even in the mist of challenging of times.
In 2020, I got to travel to Washington D.C participate in a focus group and then speak on Capital Hill.
I met some fantastic people from our state representatives to other leaders and advocates who work so hard to create a strong support system for so many causes and conditions.
I got to stay in a great city and tour the beautiful historical city of Washington D.C
We made great strides in accessibility, as health care system finally embraced telehealth and more companies allowed remote work.
Many disabled now gave hope to possibly getting a part time job working from home now because we see it is doable.
We seen a President work tirelessly to get pharmaceutical companies to create a vaccine quickly that will be safe for the USA and world.
We gave witnessed the power of science and innovation with the development of promising treatments and vaccines.
We saw our neighbors and communities come together to support one another in their time of need.
Despite the news only showing negativity there was a lot of positive happening.
2020 shown how resilient we are. And to never lose faith. Be grateful for everyday.
I don’t know what 2021 will bring;
I’m hoping it will be a fantastic year.
I just want to Thank you for your support, and following me on IG, Blog, and all social media platforms I promise to bring you current and uplifting information in 2021 and I wish you all a safe, healthy, prosperous and happy new year
Several states have officially proclaimed today as Osteonecrosis awareness day this past year a few more states came on the awareness train. And by next year God willing all 50 state’s as well as the US Virgin Islands and Puerto Rico will as well.
I will post the entire list later
But for now – Below are some posts and info
https://avascularnecrosiseducation.com/2020/05/24/avascular-necrosis-mask/amp/
Today is Avascular Necrosis Osteonecrosis Awareness Day
Many requested masks as so many cannot find them , so I contacted a local shop in my area and we made these two designs. The mask are washable
I don’t get paid anything for or a portion of the masks just doing this as a way to help those wearing a mask support the cause of Osteonecrosis aka Avascular Necrosis.
If you wish to purchase here is info. And they ship worldwide
They are closed on Sundays and Holidays
Afterburner FX
3600 Schotten Road
Hubbard Ohio 44425
3305347653 phone
Mask design
@Debla2020