November 29: Osteonecrosis (Avascular Necrosis) Awareness Day

Shining a Light on a Silent but Life-Changing Bone Disease

Every year, November 29 marks Osteonecrosis Awareness Day—a day dedicated to educating, empowering, and supporting the millions of people worldwide living with osteonecrosis, also known as avascular necrosis (AVN).

Osteonecrosis is a painful, progressive condition where bone tissue dies due to loss of blood supply. Without proper blood flow, the affected bone weakens, collapses, and can lead to severe arthritis and disability. While many people have never heard of it until diagnosis, AVN is far more common than most realize.

Today, we honor the fighters, the caregivers, and the advocates raising their voices so no one has to face this disease alone.

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What Causes Osteonecrosis?

Osteonecrosis can develop for many reasons, but the underlying issue is always the same: interrupted or reduced blood flow to the bone.

Here are some of the most common causes and risk factors:

Blood Clotting Disorders

When the tiny vessels supplying bone become blocked by clots, the bone tissue can’t receive oxygen. Conditions that increase clotting can drastically raise the risk of AVN.

Injury or Trauma

A broken bone, dislocation, or major joint injury can damage blood vessels and trigger osteonecrosis—sometimes months or years later.

Steroid Use

High-dose or long-term corticosteroid use is one of the most common causes of non-traumatic AVN. Steroids can raise lipid levels and alter marrow pressure, reducing blood flow.

Excessive Alcohol Use

Heavy drinking increases fatty deposits in the blood, which can block circulation to the bone over time.

Chemotherapy and Radiation

Cancer treatments can weaken bone structure and reduce blood flow, increasing the risk of AVN during or after treatment.

High Cholesterol

Elevated lipids can thicken and narrow blood vessels, interfering with oxygen delivery to bone tissue.

Smoking

Nicotine constricts blood vessels, reduces oxygen circulation, and slows healing—making AVN more likely and more aggressive.

Idiopathic Cases (No Known Cause)

Some people develop osteonecrosis without any identifiable reason. This can be one of the most frustrating parts of the disease.

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Signs & Symptoms to Watch For

Osteonecrosis often begins subtly, but early detection can slow progression.

Common symptoms include:
• Deep joint pain (often hip, knee, shoulder, ankle)
• Pain with weight-bearing
• Limited range of motion
• Night pain
• A limp or stiffness

Early diagnosis is critical—and MRI is the gold standard for catching AVN before collapse.

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Treatment Options for Osteonecrosis

The best treatment depends on the stage of the disease and the joint involved. The earlier AVN is found, the more joint-preserving options are available.

Regenerative & Non-Surgical Treatments

These may help slow or stop progression in early stages:

PRP (Platelet-Rich Plasma)
Uses the patient’s own platelets to stimulate healing and reduce inflammation.
Stem Cell Therapy
Mesenchymal stem cells can support bone regrowth and improve blood flow.
A2M (Alpha-2-Macroglobulin Therapy)
A natural protein that can help control inflammation and breakdown of cartilage.
Physical Therapy
Helps maintain strength, mobility, and joint function while reducing pain.
Hyperbaric Oxygen Therapy (HBOT)
High-pressure oxygen may help restore blood supply and support bone repair.

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Surgical Options When Damage Has Advanced

Core Decompression

A surgeon removes part of the inner bone to reduce pressure and encourage new blood flow.

Bone Grafting

Healthy bone is transplanted to replace damaged tissue.

Total Joint Replacement

In later stages, when collapse or arthritis has occurred, joint replacement may provide pain relief and restore mobility.
Hips, knees, and shoulders are the most commonly replaced joints in advanced AVN.

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Why Awareness Matters

Far too many people are diagnosed late, when the bone has already collapsed—limiting treatment choices and increasing the likelihood of joint replacement.

Awareness means:
• earlier detection
• more treatment options
• better outcomes
• improved quality of life

By sharing information, supporting research, and elevating patient voices, we help others find answers faster and feel less alone.

On this Osteonecrosis Awareness Day, let’s stand together—patients, caregivers, advocates, and medical professionals—and continue to push for earlier diagnosis, better treatments, and more compassion for those living with AVN.

Whether your journey began from an injury, steroids, alcohol, a medical treatment, or for no known reason…
your story matters, your pain is real, and your strength is inspiring.

You are not alone, and your voice raises awareness that could change someone else’s life.

AVN #osteonecrosis #awareness #bonedeath #AvascularNecrosis

http://www.joint-purpose.com
http://www.avascularnecrosiseducation.com

Do you or a loved one have Osteonecrosis?

If you or a loved one needs moral support while living with or caring for someone with osteonecrosis (also known as avascular necrosis), we invite you to join our Facebook support group. Please remember that this is a safe space for support and encouragement.

Important Guidelines:

You must answer all the questions to join the group.
We have a zero-tolerance policy for spammers or individuals posting inappropriate content, including any form of advertising or fundraising, such as GoFundMe campaigns.
We value all our members privacy and we do not email members of our group
Any negative or unrelated comments will not be tolerated.

Break the rules once, and you will be removed from the group.

If you’re genuinely seeking support related to osteonecrosis, we welcome you to join us!

https://www..facebook.com/groups/deadbonediseaseavN/

Avascular Necrosis Awareness Day: November 29

Avascular Necrosis Awareness Day: Raising Our Voices for a Better Tomorrow
Today , November 29, marks Avascular Necrosis -Osteonecrosis Awareness Day—a day to shed light on a condition that often lurks in the shadows, affecting thousands without recognition or understanding.
As warriors living with avascular necrosis (AVN), we collectively stand strong, sharing our shared experiences and the importance of awareness. Together, we can foster hope and encourage those battling this painful condition.

Understanding Avascular Necrosis

Avascular necrosis occurs when there is a disruption of blood supply to bones, leading to the death of bone tissue. This condition can affect any bone in the body but is most common in the hip, knee, and shoulder joints. For many, the journey with AVN begins with unrelenting pain and sometimes no pain at all it can cause discomfort, significantly impacting daily life. The symptoms may initially present as mild discomfort but can progress to severe pain that limits movement and diminishes quality of life.

Treatment Options: A Path to Recovery but there is NO cure

Despite the challenges we face, advancements in medical treatments provide hope for improved quality of life. Here are some options that have shown promise for those of us navigating the complexities of AVN:

PRP Injections (Platelet-Rich Plasma): By harnessing the body’s natural healing mechanisms, PRP therapy involves injecting concentrated platelets into the affected area to promote tissue regeneration and alleviate pain.
Stem Cell Therapy: This cutting-edge treatment utilizes stem cells to repair damaged tissues, potentially offering a pathway to recovery where traditional methods may fall short.
Prolotherapy: This regenerative injection technique aims to stimulate the body’s healing processes by injecting a sugar solution into painful joints, supporting tissue repair and reducing pain.
Surgery: In more severe cases, surgical options such as core decompression or joint replacement might be necessary. These procedures can relieve pressure in the affected bone and help restore function.

Each of these treatments holds the potential to enhance our quality of life, but it’s essential to consult with healthcare professionals to determine the best approach tailored to individual circumstances.

Lifestyle Changes – A Holistic Approach to Health

In addition to medical treatments, adopting a holistic approach to our health can significantly impact the management of AVN. Here are some lifestyle changes that can make a difference:

Eat Healthy: Nutrition plays a crucial role in our overall well-being. Incorporating a diet rich in whole foods—fruits, vegetables, lean proteins, and healthy fats—can support bone health and reduce inflammation.
Limit Alcohol: Excessive alcohol consumption can exacerbate underlying health issues and negatively impact bone health. Moderation is key.
Don’t Smoke: Smoking has been linked to various health problems, including impaired blood circulation. Quitting smoking can enhance overall health and support the healing process.
Check for Underlying Health Issues: Conditions such as Factor V Leiden, MTHFR mutations, eNOS deficiencies, and elevated Factor VIII levels can complicate AVN and should be evaluated. Regular check-ups and consultations with healthcare providers are essential to address these issues proactively.

Standing Together as Warriors

As we observe Avascular Necrosis Awareness Day, let us remember that we are not alone in this fight. Together, we raise our voices to share stories, promote understanding, and advocate for better treatment options and support for those affected. Our collective strength as warriors can bring about change—whether through increased funding for research, greater awareness among the general public, or simply supporting one another through our unique journeys.

To all the AVN warriors out there, remember: while the path may be challenging, we possess the resilience to overcome. Let’s continue to spread awareness, embrace hope, and strive for healthier, fulfilling lives.

Stay strong, stay informed, and together, we will survive.

Shining Light on Avascular Necrosis-Osteonecrosis Awareness Day: A Call for Unity

As we approach November 29, a day etched on our calendars as Avascular Necrosis-Osteonecrosis Awareness Day, the enthusiasm is palpable. Originating in states like Ohio, Pennsylvania, Iowa, Georgia, and Tennessee, and several other states this day has grown beyond its regional roots, capturing hearts and minds across the nation. A celebration of resilience, unity, and the strength of those battling this rare disease, the journey has just begun. We still have many states that have yet to recognize this awareness day.

In the spirit of reflection and progress, let’s take a closer look at what Avascular Necrosis-Osteonecrosis is and why it deserves the spotlight. Osteonecrosis occurs when the blood supply to a bone is disrupted, leading to the death of bone tissue. While it can affect anyone at any age, the rarity of this condition often results in delayed diagnosis and limited awareness.

Imagine a disease that doesn’t discriminate by age, gender, or background—a condition that can strike unexpectedly, altering lives in its wake. Avascular Necrosis-Osteonecrosis fits this description, emphasizing the importance of education and advocacy. It’s crucial to understand the pain that accompanies this condition. The affected bones, deprived of essential blood supply, lead to excruciating pain, impacting mobility and quality of life.

This awareness day isn’t just a commemoration; it’s a call to action. The commendable efforts of states like Ohio, Pennsylvania, Iowa, Georgia, and Tennessee have set the stage for a nationwide movement. Proclamations have been issued, voices have been amplified, and the journey towards recognition has begun.

As we celebrate the strides made, it’s essential to acknowledge the work that lies ahead. Advocacy is a journey, not a destination, and the goal is clear: to have all 50 states recognize and celebrate Avascular Necrosis-Osteonecrosis Awareness Day by 2024. This ambitious vision requires a collective effort.

To our esteemed congressmen, senators, and the President of the United States, we extend an invitation to join us in this noble cause. Avascular Necrosis-Osteonecrosis doesn’t discriminate based on political affiliations, and neither should our pursuit of awareness. We implore you to consider the impact of this rare disease on your constituents, urging you to champion the cause for an awareness day in every state.

It’s not a daunting task; it’s an opportunity for bipartisan collaboration, demonstrating a commitment to the health and well-being of the American people. A simple proclamation can go a long way in raising awareness, fostering empathy, and providing support to those affected by Avascular Necrosis-Osteonecrosis.

In the coming year, let’s collectively work towards making November 29 a day of national significance. Together, we can ensure that the stories of those touched by Avascular Necrosis-Osteonecrosis are heard, recognized, and celebrated from coast to coast. The journey has just begun, and with your support, we can light up the map with awareness, compassion, and unity.

Sincerely

Deb Andio

Founder

Avascular Necrosis-Osteonecrosis SuppooInt’l

http://www.avascularnecrosiseducation.com

“Like the majestic Phoenix that rises from the ashes, those of us living with Osteonecrosis are on a journey of resilience and hope. As we continue to advocate for awareness, we believe that our Awareness Day will soon shine worldwide, illuminating the path for understanding, support, and compassion. Together, our voices will soar, echoing the strength that lies within each of us.”

Advocating for Patients’ Rights: Overcoming Challenges in Healthcare

Advocating for Patients’ Rights: Overcoming Challenges in Healthcare
In today’s healthcare system, patients often encounter roadblocks when trying to access the appropriate medication for their conditions. The bureaucratic processes, cost concerns, and lack of medical expertise among policymakers contribute to the difficulties faced by individuals seeking effective treatment. However, united efforts from organizations like the Arthritis Foundation and advocacy groups can bring about change. It is imperative that we voice our concerns, demand improved policies, and ensure fair access to medication for all patients.

The current challenges in the healthcare system, such as the undue influence of non-medical entities, lengthy authorization processes, and financial burdens on patients, necessitate a collective call to action to reform healthcare policies and prioritize patients’ rights.

Non-medical Influences and the Need for Medical Autonomy:
a. Lack of health expertise among policymakers and insurance companies:

Decision-making by individuals without medical backgrounds may lead to ineffective or harmful treatments for patients.
b. Advocacy from reputed organizations:

Organizations like the Arthritis Foundation and the American Heart Association play a crucial role in educating policymakers and advocating for patient rights.
c. Importance of granting medical professionals autonomy:

Giving medical professionals the authority to make informed decisions based on their expertise ensures better patient outcomes.

Flaws in Medication Approval Process:

Trials and failures before gaining access to effective medications:

Patients with chronic conditions, such as children living with JA, Adults with rheumatoid arthritis, are often subjected to a series of failed drugs before being approved for the one that truly aids them.
Balancing cost concerns with patient welfare:
While cost considerations are essential, denying access to potentially life-changing medications does more harm than good.
c. Engaging with lawmakers for policy change:
Collaborating with governors, senators, and congressmen to push for reforms can address these flaws and make the medication approval process more patient-oriented.

Addressing Authorization Delays and Financial Burdens:
a. Lengthy authorization processes and patient suffering:

Patients often endure prolonged periods of pain while waiting for authorization for their prescribed medications.
b. Importance of timely access to treatment:
Delayed authorizations hinder the overall well-being of patients and impede their ability to manage their conditions effectively.
c. Advocating for financial support:
Raising awareness about the financial burden imposed on patients during delays in authorization can drive the need for comprehensive coverage and financial assistance.

The existing shortcomings in healthcare policies call for a collective effort to address the challenges faced by patients seeking appropriate treatment. By acknowledging the influence of non-medical entities, advocating for medical autonomy, and demanding necessary reforms, we can secure fair and timely access to medications. It is high time we empower ourselves and work alongside reputable organizations and policymakers to bring about positive change in our healthcare system. Only by voicing our concerns and advocating for patients’ rights can we ensure a brighter and healthier future for all.

Wishing you a pain free day 💚