November 29: Osteonecrosis (Avascular Necrosis) Awareness Day

Shining a Light on a Silent but Life-Changing Bone Disease

Every year, November 29 marks Osteonecrosis Awareness Day—a day dedicated to educating, empowering, and supporting the millions of people worldwide living with osteonecrosis, also known as avascular necrosis (AVN).

Osteonecrosis is a painful, progressive condition where bone tissue dies due to loss of blood supply. Without proper blood flow, the affected bone weakens, collapses, and can lead to severe arthritis and disability. While many people have never heard of it until diagnosis, AVN is far more common than most realize.

Today, we honor the fighters, the caregivers, and the advocates raising their voices so no one has to face this disease alone.

⸻

What Causes Osteonecrosis?

Osteonecrosis can develop for many reasons, but the underlying issue is always the same: interrupted or reduced blood flow to the bone.

Here are some of the most common causes and risk factors:

Blood Clotting Disorders

When the tiny vessels supplying bone become blocked by clots, the bone tissue can’t receive oxygen. Conditions that increase clotting can drastically raise the risk of AVN.

Injury or Trauma

A broken bone, dislocation, or major joint injury can damage blood vessels and trigger osteonecrosis—sometimes months or years later.

Steroid Use

High-dose or long-term corticosteroid use is one of the most common causes of non-traumatic AVN. Steroids can raise lipid levels and alter marrow pressure, reducing blood flow.

Excessive Alcohol Use

Heavy drinking increases fatty deposits in the blood, which can block circulation to the bone over time.

Chemotherapy and Radiation

Cancer treatments can weaken bone structure and reduce blood flow, increasing the risk of AVN during or after treatment.

High Cholesterol

Elevated lipids can thicken and narrow blood vessels, interfering with oxygen delivery to bone tissue.

Smoking

Nicotine constricts blood vessels, reduces oxygen circulation, and slows healing—making AVN more likely and more aggressive.

Idiopathic Cases (No Known Cause)

Some people develop osteonecrosis without any identifiable reason. This can be one of the most frustrating parts of the disease.

⸻

Signs & Symptoms to Watch For

Osteonecrosis often begins subtly, but early detection can slow progression.

Common symptoms include:
• Deep joint pain (often hip, knee, shoulder, ankle)
• Pain with weight-bearing
• Limited range of motion
• Night pain
• A limp or stiffness

Early diagnosis is critical—and MRI is the gold standard for catching AVN before collapse.

⸻

Treatment Options for Osteonecrosis

The best treatment depends on the stage of the disease and the joint involved. The earlier AVN is found, the more joint-preserving options are available.

Regenerative & Non-Surgical Treatments

These may help slow or stop progression in early stages:

PRP (Platelet-Rich Plasma)
Uses the patient’s own platelets to stimulate healing and reduce inflammation.
Stem Cell Therapy
Mesenchymal stem cells can support bone regrowth and improve blood flow.
A2M (Alpha-2-Macroglobulin Therapy)
A natural protein that can help control inflammation and breakdown of cartilage.
Physical Therapy
Helps maintain strength, mobility, and joint function while reducing pain.
Hyperbaric Oxygen Therapy (HBOT)
High-pressure oxygen may help restore blood supply and support bone repair.

⸻

Surgical Options When Damage Has Advanced

Core Decompression

A surgeon removes part of the inner bone to reduce pressure and encourage new blood flow.

Bone Grafting

Healthy bone is transplanted to replace damaged tissue.

Total Joint Replacement

In later stages, when collapse or arthritis has occurred, joint replacement may provide pain relief and restore mobility.
Hips, knees, and shoulders are the most commonly replaced joints in advanced AVN.

⸻

Why Awareness Matters

Far too many people are diagnosed late, when the bone has already collapsed—limiting treatment choices and increasing the likelihood of joint replacement.

Awareness means:
• earlier detection
• more treatment options
• better outcomes
• improved quality of life

By sharing information, supporting research, and elevating patient voices, we help others find answers faster and feel less alone.

On this Osteonecrosis Awareness Day, let’s stand together—patients, caregivers, advocates, and medical professionals—and continue to push for earlier diagnosis, better treatments, and more compassion for those living with AVN.

Whether your journey began from an injury, steroids, alcohol, a medical treatment, or for no known reason…
your story matters, your pain is real, and your strength is inspiring.

You are not alone, and your voice raises awareness that could change someone else’s life.

AVN #osteonecrosis #awareness #bonedeath #AvascularNecrosis

http://www.joint-purpose.com
http://www.avascularnecrosiseducation.com

Selecting between an Orthopedic Surgeon and a Rheumatologist for Your Musculoskeletal Pain

Selecting between an Orthopedic Surgeon and a Rheumatologist for Your Musculoskeletal Pain: A Comprehensive Guide

Choosing between an orthopedic surgeon and a rheumatologist can be a pivotal decision when seeking treatment for musculoskeletal pain. Usually we also may need a referral from our PCP.

Understanding the differences between these specialists and the conditions they treat is essential for effective pain management and recovery. In todays blog post we’ll delve into the nuances of orthopedic surgery and rheumatology, helping you make an informed choice regarding your healthcare needs.

Orthopedic Surgeon vs. Rheumatologist: Which Specialist to Choose?
When deciding between an orthopedic surgeon and a rheumatologist, several factors come into play. Let’s explore the distinctions between these medical professionals and the conditions they specialize in treating:

Orthopedic Surgeon:
Orthopedic surgeons focus on diagnosing and treating physical ailments related to the musculoskeletal system. Consider consulting an orthopedic surgeon if you experience:

Pain resulting from a physical injury or trauma
Weight-bearing discomfort (e.g., knee pain, foot pain, during certain movements)
Osteoarthritis or joint degeneration
Persistent joint pain unresponsive to conservative treatment
Need for joint replacement surgeries, particularly in hips and knees

Rheumatologist:
On the other hand, rheumatologists specialize in systemic inflammatory disorders affecting the musculoskeletal system. It’s advisable to seek a rheumatologist’s expertise if you exhibit symptoms such as:

Joint or muscle pain accompanied by systemic manifestations like fatigue, fever, or rashes
Non-traumatic joint pain or stiffness
Pain affecting multiple joints simultaneously

Diving Deeper: Orthopedics and Rheumatology Explained
Understanding the scope of orthopedics and rheumatology provides insights into their respective areas of expertise:

Orthopedics:
Orthopedics encompasses the diagnosis and treatment of musculoskeletal conditions, including bones, muscles, ligaments, and tendons. Orthopedic surgeons specialize in:

Identifying structural abnormalities and injuries within the musculoskeletal system
Performing surgical interventions to address fractures, ligament tears, and cartilage damage
Providing non-surgical therapies like physical therapy, injections like cortisone, prp, stem cell, prolotherapy and medications for pain management and rehabilitation

Rheumatology:
Rheumatology focuses on diagnosing and managing rheumatic diseases, which involve systemic inflammation and immune dysfunction affecting the musculoskeletal system. Rheumatologists are adept at:

Conducting comprehensive evaluations and diagnostic tests to identify underlying inflammatory conditions
Prescribing disease-modifying medications and biologics to alleviate symptoms and prevent disease progression
Collaborating with other specialists, including orthopedic surgeons, for integrated care in complex cases requiring surgical intervention

Orthopedic Treatment vs. Rheumatological Management: A Comparative Analysis
The treatment modalities offered by orthopedic surgeons and rheumatologists differ based on the underlying causes of musculoskeletal pain:

Orthopedic Treatment:
Orthopedic interventions primarily target structural abnormalities and injuries within the musculoskeletal system. These may include:

Surgical procedures such as ACL reconstruction, joint replacement surgeries (e.g., hips, knees), and arthroscopic interventions
Non-surgical therapies like physical therapy, corticosteroid injections, and orthotic devices for functional support

Rheumatological Management:
Rheumatologists focus on managing systemic inflammatory conditions through targeted medical interventions. These may involve:

Pharmacological treatments such as disease-modifying anti-rheumatic drugs (DMARDs), biologic agents, and corticosteroids to suppress inflammation and modify disease progression
Multidisciplinary approaches integrating medication management, lifestyle modifications, and supportive therapies for holistic care

Making an Informed Decision: Factors to Consider
When determining whether to consult an orthopedic surgeon or a rheumatologist, consider the following factors:

Identify the Root Cause:
Evaluate whether your pain stems from a traumatic injury, structural abnormality, or underlying inflammatory condition.

Assess Additional Symptoms:
Take note of accompanying systemic symptoms such as fever, fatigue, or skin changes, which may indicate an underlying rheumatic disease.

Seek Specialized Expertise:
Choose a specialist whose skills and experience align with your specific condition and treatment needs.

Emphasize Early Intervention:
Prioritize timely evaluation and intervention to prevent disease progression and optimize treatment outcomes.

Remember choosing between an orthopedic surgeon and a rheumatologist depends on the nature of your musculoskeletal pain, underlying conditions, and treatment goals.

By understanding the roles and expertise of these specialists, you can make an informed decision to address your healthcare needs effectively. Remember, early intervention and personalized care are key to achieving optimal recovery and enhancing your quality of life.

Shining Light on Avascular Necrosis-Osteonecrosis Awareness Day: A Call for Unity

As we approach November 29, a day etched on our calendars as Avascular Necrosis-Osteonecrosis Awareness Day, the enthusiasm is palpable. Originating in states like Ohio, Pennsylvania, Iowa, Georgia, and Tennessee, and several other states this day has grown beyond its regional roots, capturing hearts and minds across the nation. A celebration of resilience, unity, and the strength of those battling this rare disease, the journey has just begun. We still have many states that have yet to recognize this awareness day.

In the spirit of reflection and progress, let’s take a closer look at what Avascular Necrosis-Osteonecrosis is and why it deserves the spotlight. Osteonecrosis occurs when the blood supply to a bone is disrupted, leading to the death of bone tissue. While it can affect anyone at any age, the rarity of this condition often results in delayed diagnosis and limited awareness.

Imagine a disease that doesn’t discriminate by age, gender, or background—a condition that can strike unexpectedly, altering lives in its wake. Avascular Necrosis-Osteonecrosis fits this description, emphasizing the importance of education and advocacy. It’s crucial to understand the pain that accompanies this condition. The affected bones, deprived of essential blood supply, lead to excruciating pain, impacting mobility and quality of life.

This awareness day isn’t just a commemoration; it’s a call to action. The commendable efforts of states like Ohio, Pennsylvania, Iowa, Georgia, and Tennessee have set the stage for a nationwide movement. Proclamations have been issued, voices have been amplified, and the journey towards recognition has begun.

As we celebrate the strides made, it’s essential to acknowledge the work that lies ahead. Advocacy is a journey, not a destination, and the goal is clear: to have all 50 states recognize and celebrate Avascular Necrosis-Osteonecrosis Awareness Day by 2024. This ambitious vision requires a collective effort.

To our esteemed congressmen, senators, and the President of the United States, we extend an invitation to join us in this noble cause. Avascular Necrosis-Osteonecrosis doesn’t discriminate based on political affiliations, and neither should our pursuit of awareness. We implore you to consider the impact of this rare disease on your constituents, urging you to champion the cause for an awareness day in every state.

It’s not a daunting task; it’s an opportunity for bipartisan collaboration, demonstrating a commitment to the health and well-being of the American people. A simple proclamation can go a long way in raising awareness, fostering empathy, and providing support to those affected by Avascular Necrosis-Osteonecrosis.

In the coming year, let’s collectively work towards making November 29 a day of national significance. Together, we can ensure that the stories of those touched by Avascular Necrosis-Osteonecrosis are heard, recognized, and celebrated from coast to coast. The journey has just begun, and with your support, we can light up the map with awareness, compassion, and unity.

Sincerely

Deb Andio

Founder

Avascular Necrosis-Osteonecrosis SuppooInt’l

http://www.avascularnecrosiseducation.com

“Like the majestic Phoenix that rises from the ashes, those of us living with Osteonecrosis are on a journey of resilience and hope. As we continue to advocate for awareness, we believe that our Awareness Day will soon shine worldwide, illuminating the path for understanding, support, and compassion. Together, our voices will soar, echoing the strength that lies within each of us.”

Advocating for Patients’ Rights: Overcoming Challenges in Healthcare

Advocating for Patients’ Rights: Overcoming Challenges in Healthcare
In today’s healthcare system, patients often encounter roadblocks when trying to access the appropriate medication for their conditions. The bureaucratic processes, cost concerns, and lack of medical expertise among policymakers contribute to the difficulties faced by individuals seeking effective treatment. However, united efforts from organizations like the Arthritis Foundation and advocacy groups can bring about change. It is imperative that we voice our concerns, demand improved policies, and ensure fair access to medication for all patients.

The current challenges in the healthcare system, such as the undue influence of non-medical entities, lengthy authorization processes, and financial burdens on patients, necessitate a collective call to action to reform healthcare policies and prioritize patients’ rights.

Non-medical Influences and the Need for Medical Autonomy:
a. Lack of health expertise among policymakers and insurance companies:

Decision-making by individuals without medical backgrounds may lead to ineffective or harmful treatments for patients.
b. Advocacy from reputed organizations:

Organizations like the Arthritis Foundation and the American Heart Association play a crucial role in educating policymakers and advocating for patient rights.
c. Importance of granting medical professionals autonomy:

Giving medical professionals the authority to make informed decisions based on their expertise ensures better patient outcomes.

Flaws in Medication Approval Process:

Trials and failures before gaining access to effective medications:

Patients with chronic conditions, such as children living with JA, Adults with rheumatoid arthritis, are often subjected to a series of failed drugs before being approved for the one that truly aids them.
Balancing cost concerns with patient welfare:
While cost considerations are essential, denying access to potentially life-changing medications does more harm than good.
c. Engaging with lawmakers for policy change:
Collaborating with governors, senators, and congressmen to push for reforms can address these flaws and make the medication approval process more patient-oriented.

Addressing Authorization Delays and Financial Burdens:
a. Lengthy authorization processes and patient suffering:

Patients often endure prolonged periods of pain while waiting for authorization for their prescribed medications.
b. Importance of timely access to treatment:
Delayed authorizations hinder the overall well-being of patients and impede their ability to manage their conditions effectively.
c. Advocating for financial support:
Raising awareness about the financial burden imposed on patients during delays in authorization can drive the need for comprehensive coverage and financial assistance.

The existing shortcomings in healthcare policies call for a collective effort to address the challenges faced by patients seeking appropriate treatment. By acknowledging the influence of non-medical entities, advocating for medical autonomy, and demanding necessary reforms, we can secure fair and timely access to medications. It is high time we empower ourselves and work alongside reputable organizations and policymakers to bring about positive change in our healthcare system. Only by voicing our concerns and advocating for patients’ rights can we ensure a brighter and healthier future for all.

Wishing you a pain free day 💚

Update

I maybe combining this site to my main blog at https://chronicallygratefuldebla.com/ now called joint-purpose.com

Please join me over there as I am hoping to have the transition completed by December31,2023

Lots of content to move. Check out Joint -Purpose.com and my Faith Blog www.joyful-echoes.com

Thanks

Deb

Exercising with Osteonecrosis and Osteoarthritis and Spondylolisthesis the trifecta

If you have Osteonecrosis of the knee like me exercise should and can still be a part of your lifestyle. But we must must must use caution and we just can’t go all willie nillie and do this or that on our own. We need to always first consult our ortho and then see a trained physical therapist one who understands osteonecrosis. The key is to know the right exercises and the right way to do them.

Generally, long-term exercise is safe for adults with knee pain from Osteonecrosis but as we know we can go from stage one to stage 3 in as less as weeks and as long as months even years, that’s why it’s imperative we keep in contact with our pcp and orthopedic.

Exercise when performed correctly, the right exercises can even help decrease our pain of osteonecrosis and osteoarthritis and other bone and joint conditions

It can improve our ability to carry out ordinary physical activities. We have to to keep our muscles strong as they support the joints and keeps them stabilized.

It may seem counterintuitive for exercise to decrease knee pain, because when our knees hurt we don’t really feel like exercising, but for me that’s when I have to push through because it will help my pain

But it’s helpful to understand how it works.

Exercise improves:

hormonal balance
lowers blood sugar
improves articular cartilage tolerance
strengthens muscles and muscles are what supports our bones.

Exercise also improves your muscle strength. Stronger muscles are able to carry your body weight more efficiently, relieving some of the burden put on the joints.

However, performing the “wrong” exercise or using poor form may increase pain or inflict irritation to the joint.

“Pain with exercise isn’t normal,”

That said, it’s important to note that when starting a new exercise program, you may experience “muscular soreness,” which is different from joint pain.

It’s normal to experience muscle soreness fir a day or even two after exercises, when I first started a simple walking program I walked every other day. I gave my muscles a chance to rest.

I liked my PT sessions and afterwards I got the Electrical Muscle Stimulation (EMS) device which helped my muscles relax and recover.

I highly suggest a physical therapist, they will be guiding you through the process. An expert will analyze your form and make suggestions. They show you how to properly do the exercises.

You don’t want to injure something else in the process of trying to stay active.

Biking , swimming water aerobics are much easier on the joints.