November 29: Osteonecrosis (Avascular Necrosis) Awareness Day

November 29: Osteonecrosis (Avascular Necrosis) Awareness Day

Shining a Light on a Silent but Life-Changing Bone Disease

Every year, November 29 marks Osteonecrosis Awareness Day—a day dedicated to educating, empowering, and supporting the millions of people worldwide living with osteonecrosis, also known as avascular necrosis (AVN).

Osteonecrosis is a painful, progressive condition where bone tissue dies due to loss of blood supply. Without proper blood flow, the affected bone weakens, collapses, and can lead to severe arthritis and disability. While many people have never heard of it until diagnosis, AVN is far more common than most realize.

Today, we honor the fighters, the caregivers, and the advocates raising their voices so no one has to face this disease alone.

What Causes Osteonecrosis?

Osteonecrosis can develop for many reasons, but the underlying issue is always the same: interrupted or reduced blood flow to the bone.

Here are some of the most common causes and risk factors:

  1. Blood Clotting Disorders

When the tiny vessels supplying bone become blocked by clots, the bone tissue can’t receive oxygen. Conditions that increase clotting can drastically raise the risk of AVN.

  1. Injury or Trauma

A broken bone, dislocation, or major joint injury can damage blood vessels and trigger osteonecrosis—sometimes months or years later.

  1. Steroid Use

High-dose or long-term corticosteroid use is one of the most common causes of non-traumatic AVN. Steroids can raise lipid levels and alter marrow pressure, reducing blood flow.

  1. Excessive Alcohol Use

Heavy drinking increases fatty deposits in the blood, which can block circulation to the bone over time.

  1. Chemotherapy and Radiation

Cancer treatments can weaken bone structure and reduce blood flow, increasing the risk of AVN during or after treatment.

  1. High Cholesterol

Elevated lipids can thicken and narrow blood vessels, interfering with oxygen delivery to bone tissue.

  1. Smoking

Nicotine constricts blood vessels, reduces oxygen circulation, and slows healing—making AVN more likely and more aggressive.

  1. Idiopathic Cases (No Known Cause)

Some people develop osteonecrosis without any identifiable reason. This can be one of the most frustrating parts of the disease.

Signs & Symptoms to Watch For

Osteonecrosis often begins subtly, but early detection can slow progression.

Common symptoms include:
• Deep joint pain (often hip, knee, shoulder, ankle)
• Pain with weight-bearing
• Limited range of motion
• Night pain
• A limp or stiffness

Early diagnosis is critical—and MRI is the gold standard for catching AVN before collapse.

Treatment Options for Osteonecrosis

The best treatment depends on the stage of the disease and the joint involved. The earlier AVN is found, the more joint-preserving options are available.

Regenerative & Non-Surgical Treatments

These may help slow or stop progression in early stages:

  • PRP (Platelet-Rich Plasma)
    Uses the patient’s own platelets to stimulate healing and reduce inflammation.
  • Stem Cell Therapy
    Mesenchymal stem cells can support bone regrowth and improve blood flow.
  • A2M (Alpha-2-Macroglobulin Therapy)
    A natural protein that can help control inflammation and breakdown of cartilage.
  • Physical Therapy
    Helps maintain strength, mobility, and joint function while reducing pain.
  • Hyperbaric Oxygen Therapy (HBOT)
    High-pressure oxygen may help restore blood supply and support bone repair.

Surgical Options When Damage Has Advanced

  • Core Decompression

A surgeon removes part of the inner bone to reduce pressure and encourage new blood flow.

  • Bone Grafting

Healthy bone is transplanted to replace damaged tissue.

  • Total Joint Replacement

In later stages, when collapse or arthritis has occurred, joint replacement may provide pain relief and restore mobility.
Hips, knees, and shoulders are the most commonly replaced joints in advanced AVN.

Why Awareness Matters

Far too many people are diagnosed late, when the bone has already collapsed—limiting treatment choices and increasing the likelihood of joint replacement.

Awareness means:
• earlier detection
• more treatment options
• better outcomes
• improved quality of life

By sharing information, supporting research, and elevating patient voices, we help others find answers faster and feel less alone.

On this Osteonecrosis Awareness Day, let’s stand together—patients, caregivers, advocates, and medical professionals—and continue to push for earlier diagnosis, better treatments, and more compassion for those living with AVN.

Whether your journey began from an injury, steroids, alcohol, a medical treatment, or for no known reason…
your story matters, your pain is real, and your strength is inspiring.

You are not alone, and your voice raises awareness that could change someone else’s life.

AVN #osteonecrosis #awareness #bonedeath #AvascularNecrosis

http://www.joint-purpose.com
http://www.avascularnecrosiseducation.com

Happy Saint Patrick’s Day

Happy Saint Patrick’s Day: Embracing the Luck of the Irish and a Positive MindsetHappy Saint Patrick’s Day, everyone! 🍀 As we celebrate this vibrant day filled with emerald green, shamrocks, and the promise of good fortune, I want to take a moment to send heartfelt wishes your way. May you have a happy, healthy, and prosperous day ahead, filled with joy and positivity. Remember, all positive luck is Irish, and today is a perfect opportunity to focus on what brings us happiness!

Acknowledging the Challenges

For many of us, especially those living with conditions like osteoarthritis, spondylolisthesis, or osteonecrosis, each day can present its own set of challenges. Joint pain and discomfort can often make even the simplest tasks feel overwhelming. On days like today, it’s essential to recognize that while we celebrate, there may also be struggles beneath the surface.

It’s okay to acknowledge that living with these conditions can be tough. The journey may not always be easy, but taking one day at a time can help us stay grounded. If you find yourself feeling fatigued today, please don’t feel guilty for resting. Your body deserves care and compassion, especially when dealing with chronic pain.

The Importance of Self-Care

Self-care is not just a trendy buzzword; it’s a vital part of maintaining our well-being. Whether that means taking a moment to unwind with a good book, enjoying a warm bath, or simply allowing yourself the grace to slow down, prioritize your needs. Remember, every small act of kindness towards yourself counts and contributes to a more positive mindset.

Finding the Silver Lining

On this festive day, let’s also focus on the silver linings that accompany our challenges. It’s easy to get bogged down by negativity and pain, but each day also brings opportunities for joy and gratitude. Surround yourself with uplifting people, indulge in activities that make you smile, and practice gratitude for the little things that bring light into your life.

Celebrating Our Journey

As we raise a glass to toast the spirit of Saint Patrick’s Day, let’s celebrate not only our victories but also our resilience. It’s a day for laughter, connection, and a reminder of the strength we possess to face our hurdles. May the luck of the Irish be with you today and always, filling your life with health, happiness, and an abundance of positive energy.

Cheers to taking it one day at a time, embracing the journey, and finding joy amidst the challenges! Happy Saint Patrick’s Day! 🍀✨

Do you or a loved one have Osteonecrosis?

If you or a loved one needs moral support while living with or caring for someone with osteonecrosis (also known as avascular necrosis), we invite you to join our Facebook support group. Please remember that this is a safe space for support and encouragement.

Important Guidelines:

  • You must answer all the questions to join the group.
  • We have a zero-tolerance policy for spammers or individuals posting inappropriate content, including any form of advertising or fundraising, such as GoFundMe campaigns.
  • We value all our members privacy and we do not email members of our group 
  • Any negative or unrelated comments will not be tolerated.

Break the rules once, and you will be removed from the group.

If you’re genuinely seeking support related to osteonecrosis, we welcome you to join us!

https://www..facebook.com/groups/deadbonediseaseavN/

Avascular Necrosis Awareness Day: November 29

Avascular Necrosis Awareness Day: Raising Our Voices for a Better Tomorrow
Today , November 29, marks Avascular Necrosis -Osteonecrosis Awareness Day—a day to shed light on a condition that often lurks in the shadows, affecting thousands without recognition or understanding.
As warriors living with avascular necrosis (AVN), we collectively stand strong, sharing our shared experiences and the importance of awareness. Together, we can foster hope and encourage those battling this painful condition.

Understanding Avascular Necrosis

Avascular necrosis occurs when there is a disruption of blood supply to bones, leading to the death of bone tissue. This condition can affect any bone in the body but is most common in the hip, knee, and shoulder joints. For many, the journey with AVN begins with unrelenting pain and sometimes no pain at all it can cause discomfort, significantly impacting daily life. The symptoms may initially present as mild discomfort but can progress to severe pain that limits movement and diminishes quality of life.

Treatment Options: A Path to Recovery but there is NO cure

Despite the challenges we face, advancements in medical treatments provide hope for improved quality of life. Here are some options that have shown promise for those of us navigating the complexities of AVN:

  1. PRP Injections (Platelet-Rich Plasma): By harnessing the body’s natural healing mechanisms, PRP therapy involves injecting concentrated platelets into the affected area to promote tissue regeneration and alleviate pain.
  2. Stem Cell Therapy: This cutting-edge treatment utilizes stem cells to repair damaged tissues, potentially offering a pathway to recovery where traditional methods may fall short.
  3. Prolotherapy: This regenerative injection technique aims to stimulate the body’s healing processes by injecting a sugar solution into painful joints, supporting tissue repair and reducing pain.
  4. Surgery: In more severe cases, surgical options such as core decompression or joint replacement might be necessary. These procedures can relieve pressure in the affected bone and help restore function.

Each of these treatments holds the potential to enhance our quality of life, but it’s essential to consult with healthcare professionals to determine the best approach tailored to individual circumstances.

Lifestyle Changes – A Holistic Approach to Health

In addition to medical treatments, adopting a holistic approach to our health can significantly impact the management of AVN. Here are some lifestyle changes that can make a difference:

  • Eat Healthy: Nutrition plays a crucial role in our overall well-being. Incorporating a diet rich in whole foods—fruits, vegetables, lean proteins, and healthy fats—can support bone health and reduce inflammation.
  • Limit Alcohol: Excessive alcohol consumption can exacerbate underlying health issues and negatively impact bone health. Moderation is key.
  • Don’t Smoke: Smoking has been linked to various health problems, including impaired blood circulation. Quitting smoking can enhance overall health and support the healing process.
  • Check for Underlying Health Issues: Conditions such as Factor V Leiden, MTHFR mutations, eNOS deficiencies, and elevated Factor VIII levels can complicate AVN and should be evaluated. Regular check-ups and consultations with healthcare providers are essential to address these issues proactively.

Standing Together as Warriors

As we observe Avascular Necrosis Awareness Day, let us remember that we are not alone in this fight. Together, we raise our voices to share stories, promote understanding, and advocate for better treatment options and support for those affected. Our collective strength as warriors can bring about change—whether through increased funding for research, greater awareness among the general public, or simply supporting one another through our unique journeys.

To all the AVN warriors out there, remember: while the path may be challenging, we possess the resilience to overcome. Let’s continue to spread awareness, embrace hope, and strive for healthier, fulfilling lives.

Stay strong, stay informed, and together, we will survive.

Living a Life of Chronic Gratitude: Finding Blessings in Every Moment

I wanted to share this here as well, because even though this isn’t a typical blog page, it is an educational page for awareness for chronic pain, osteonecrosis Arthritis, and any chronic pain of any kind but I started this to focus on bone health, but here’s a blog post from my current blogs that I wanted to share with you because I think it sometimes makes our life a little easier

In the journey of life, we are all bound to encounter trials and tribulations, whether we navigate through days filled with sunshine or weather storms of adversity. For individuals like myself, living with chronic pain has become a constant companion, although since moving to Florida it’s been less, fir 30 years it’s been a silent shadow that lingers in the background of daily existence. Yet, amidst the challenges and uncertainties that pain brings, I have learned to embrace a mindset of chronic gratitude – an attitude that transcends circumstances and illuminates even the darkest moments with rays of hope and appreciation.

As the author of the blog “ChronicallyGratefulDebla,” aka now called http://www.Joint-Purpose.com and also http://www.joyful-echoes.com

I am on a personal sojourn towards discovering the profound beauty of being grateful in both the good times and the not-so-good times. This journey has taught me that gratitude is not just a fleeting emotion evoked by fleeting circumstances; it is a state of being, a conscious decision to acknowledge and appreciate the blessings that surround us, no matter how small or seemingly insignificant they may appear.

Living with chronic pain has its own set of challenges – the unrelenting ache, the limitations it imposes, the moments of despair when it seems like the pain will never end. However, through the lens of chronic gratitude, I have come to understand that even in the midst of pain, there are still reasons to be thankful. It is in those moments of discomfort and struggle that we discover our inner strength, our resilience, and our capacity to endure.

Whether we are working full-time, part-time, or currently unemployed, the trials and tribulations of life do not discriminate. They touch us all in different ways, shaping our experiences and testing our resolve. It is during these times that being grounded in faith becomes essential, serving as a beacon of light in the darkness, a source of comfort and guidance when the road ahead seems uncertain.

Being chronically grateful does not mean denying the challenges we face or pretending that everything is perfect. Instead, it is an acknowledgment of the complexities of life, a recognition that even in the midst of pain and adversity, there are still reasons to give thanks. It is an act of defiance against despair, a declaration of hope in the face of uncertainty.

So, as I navigate the highs and lows of my journey, I choose to remain chronically grateful, blessed, and thankful. I choose to see the beauty in every moment, to find joy in the midst of sorrow, and to embrace each day as a gift, no matter what it may bring. Because in the end, gratitude is not just a feeling – it is a way of life, a testament to the resilience of the human spirit and the power of faith to sustain us through the darkest of times.

Shining Light on Avascular Necrosis-Osteonecrosis Awareness Day: A Call for Unity

As we approach November 29, a day etched on our calendars as Avascular Necrosis-Osteonecrosis Awareness Day, the enthusiasm is palpable. Originating in states like Ohio, Pennsylvania, Iowa, Georgia, and Tennessee, and several other states this day has grown beyond its regional roots, capturing hearts and minds across the nation. A celebration of resilience, unity, and the strength of those battling this rare disease, the journey has just begun. We still have many states that have yet to recognize this awareness day.

In the spirit of reflection and progress, let’s take a closer look at what Avascular Necrosis-Osteonecrosis is and why it deserves the spotlight. Osteonecrosis occurs when the blood supply to a bone is disrupted, leading to the death of bone tissue. While it can affect anyone at any age, the rarity of this condition often results in delayed diagnosis and limited awareness.

Imagine a disease that doesn’t discriminate by age, gender, or background—a condition that can strike unexpectedly, altering lives in its wake. Avascular Necrosis-Osteonecrosis fits this description, emphasizing the importance of education and advocacy. It’s crucial to understand the pain that accompanies this condition. The affected bones, deprived of essential blood supply, lead to excruciating pain, impacting mobility and quality of life.

This awareness day isn’t just a commemoration; it’s a call to action. The commendable efforts of states like Ohio, Pennsylvania, Iowa, Georgia, and Tennessee have set the stage for a nationwide movement. Proclamations have been issued, voices have been amplified, and the journey towards recognition has begun.

As we celebrate the strides made, it’s essential to acknowledge the work that lies ahead. Advocacy is a journey, not a destination, and the goal is clear: to have all 50 states recognize and celebrate Avascular Necrosis-Osteonecrosis Awareness Day by 2024. This ambitious vision requires a collective effort.

To our esteemed congressmen, senators, and the President of the United States, we extend an invitation to join us in this noble cause. Avascular Necrosis-Osteonecrosis doesn’t discriminate based on political affiliations, and neither should our pursuit of awareness. We implore you to consider the impact of this rare disease on your constituents, urging you to champion the cause for an awareness day in every state.

It’s not a daunting task; it’s an opportunity for bipartisan collaboration, demonstrating a commitment to the health and well-being of the American people. A simple proclamation can go a long way in raising awareness, fostering empathy, and providing support to those affected by Avascular Necrosis-Osteonecrosis.

In the coming year, let’s collectively work towards making November 29 a day of national significance. Together, we can ensure that the stories of those touched by Avascular Necrosis-Osteonecrosis are heard, recognized, and celebrated from coast to coast. The journey has just begun, and with your support, we can light up the map with awareness, compassion, and unity.

Sincerely

Deb Andio

Founder

Avascular Necrosis-Osteonecrosis SuppooInt’l

http://www.avascularnecrosiseducation.com

“Like the majestic Phoenix that rises from the ashes, those of us living with Osteonecrosis are on a journey of resilience and hope. As we continue to advocate for awareness, we believe that our Awareness Day will soon shine worldwide, illuminating the path for understanding, support, and compassion. Together, our voices will soar, echoing the strength that lies within each of us.”

Osteonecrosis- and New Logo Designs More to Come.

Hey everyone! Today I want to talk about a topic that is close to my heart – osteonecrosis. Living with this rare condition can be really challenging, both physically and mentally. Osteonecrosis occurs when there is a lack of blood supply to the bone and joint, which can eventually lead to the collapse of the bone and the need for a joint replacement. It’s a tough journey, but remember, you’re not alone.

There are various underlying causes for osteonecrosis, including trauma to the bone or joint, blood clotting disorders, autoimmune conditions, cancer treatments like radiation and chemotherapy, as well as certain diseases like vasculitis, lupus, HIV, and sickle cell anemia. Lifestyle factors such as smoking and excessive drinking can also contribute to the development of osteonecrosis. Additionally, the chronic use of corticosteroids is a known cause for many individuals.

However, it’s crucial to note that not everyone who experiences these factors will develop osteonecrosis. Each person’s journey with this condition is unique, and it’s important not to blame ourselves or feel guilty for something that may be beyond our control.

But here’s the thing – we need better treatment options for osteonecrosis. Having access to alternative medications like platelet-rich plasma (PRP) therapy can make a significant difference in managing this condition and potentially preventing the need for joint replacements. PRP therapy involves using a concentrated form of a patient’s own blood to promote healing and regeneration in the affected area.

Unfortunately, insurance companies often don’t cover PRP therapy or other alternative treatments for osteonecrosis. This makes it challenging for individuals to explore all available options to manage their condition effectively. We need to raise awareness about the importance of these treatments and advocate for insurance coverage, ensuring that everyone has access to the best possible care.

So, let’s come together and spread awareness about osteonecrosis. Share your experiences and knowledge, support one another, and join the fight for better treatment options. Together, we can make a difference in the lives of those living with this condition. Don’t forget to use the hashtags #OsteonecrosisAwareness and #JointHealthMatters to amplify our message.

Remember, everyone’s journey is unique, but together we can make a difference. Let’s continue to spread awareness and support one another in this fight against osteonecrosis. Stay strong, warriors! 💪🙌

The Guardian

I’m excited to share with you one of the new logo designs for Osteonecrosis awareness! Introducing “The Guardian” – a symbol of strength, protection, and unity in the fight against this rare condition.

The logo features a bold and powerful image of a guardian angel with outstretched wings, symbolizing the support and protection we offer to those affected by osteonecrosis. The angel is seen holding a bone, representing the importance of bone health and the need to raise awareness about this condition.

The color palette chosen for the logo reflects the resilience and determination of individuals living with osteonecrosis. Shades of blue and purple evoke a sense of calmness, hope, and empowerment, while the green is for life and the touch of gold -white adds a touch of elegance and sophistication.

The Guardian logo aims to capture attention and spark curiosity, encouraging individuals to learn more about osteonecrosis and become advocates for better treatment options and insurance coverage. By using this logo, we are creating a unified and recognizable symbol that can be shared across social media platforms, websites, and events, creating a sense of community and solidarity.

As an influencer, it’s essential for me to use my platform to spread awareness and support those affected by osteonecrosis. I encourage you all to join me in using the hashtag #GuardianOfBoneHealth when sharing posts related to this condition and the new logo. Let’s come together and make a positive impact in the lives of individuals battling osteonecrosis.

Stay strong and keep fighting, warriors! 💙💜💚

Logo 2 The Multi-Phoenix

Also is

The phoenix is a powerful symbol of transformation and resilience, which aligns perfectly with the journey of those living with osteonecrosis. By incorporating the phoenix logo into our social media posts, we can further emphasize the strength and determination of individuals battling this condition.

Let’s use the hashtag #RisingStrong to accompany posts featuring the phoenix logo. Together, we can inspire hope and encourage others to rise above challenges and embrace their own inner strength.

If you’re interested in using the phoenix logo on your social media platforms, feel free to reach out to me for the high-resolution image. Let’s continue raising awareness and supporting one another in this journey of resilience.

Stay powerful, warriors! 🔥💪

Update

I maybe combining this site to my main blog at https://chronicallygratefuldebla.com/ now called joint-purpose.com

Please join me over there as I am hoping to have the transition completed by December31,2023

Lots of content to move. Check out Joint -Purpose.com and my Faith Blog www.joyful-echoes.com

Thanks

Deb

Join my new Clubhouse Room

All things arthritis

Since late stage Osteonecrosis leads to severe osteoarthritis I feel they are under the same umbrella although different in some ways and the same in other ways.

Link to join The Clubhouse New spot

https://www.clubhouse.com/room/wg5c5DG1G8iDl6pVd:EBeGc6yiEqlOHOXuTQYzP18p7uhtKpCBSkfvsgL7w-U?utm_medium=ch_room_pt&utm_campaign=YEvlhG2P4LoHYqbG1UhgLw-488396

Poor Diet and Being Overweight doesn’t help Osteonecrosis

I lived for 20 years with osteoarthritis but nothing was as scary and painful as my Osteonecrosis diagnosis. I gained a lot of weight because I. Oils no longer work and I won’t lie I stuffed myself with food to comfort myself. I went up to 293 lbs. I can’t believe I let myself get that big. Something had to change because I was too fat for a joint replacement and honestly I didn’t want one. So I had to do something, so I changed the way I ate I noticed a great improvement. People thought I was crazy but I had less pain.

I didn’t quit everything cold Turkey. I did stop smoking cold Turkey best decision I ever made.

I added more plants raw and cooked and lessened the meat intake. I started out having meatless Monday Wednesday and Friday soon it was meatless Saturday also.

I cut out 85% of all the crackers and cheese puffs all the stuff that we love but know it’s not real food. When I wanted chips I made a baked potato or a baked sweet potato. When I wanted chips and dip I made my own bean dip and hummus and dipped peppers, celery and sometimes a few crackers. I wasn’t perfect but I really began eating to live not living to eat.

My cholesterol dropped to fantastic numbers I went from total cholesterol of 210 to a total of 172 in a matter of months then down to 158. My good cholesterol went from 38 to 60. So I was on the right path. It wasn’t easy, it still isn’t easy because let’s face it junk food is every place. My next post I will post about how to eat healthy at fast food restaurants and yummy food fast that’s healthy!!

I became a flexitarian meaning I ate mostly plant based and once a week ate chicken and fish. Backed or grilled .

Good bye to greasy fried food, I also cut out 80 percent of processed junk .

Stopped all cola and sugary drinks I never was much of a pop drinker.

Many thought this was crazy and would not do much. But it did.

Then in 2019 there was a study that also confirmed similar findings .

I got off blood pressure medication and my bones didn’t feel like a tourniquet around them.

I also with the ok if my Ortho started taking Cureamed curcumin 375 1-2 times a day for 2 weeks then just once a day. It seemed to help my pain and thinned my blood some. So if you take blood thinners don’t just try this.

Always talk to your doctor before doing anything new.

Fast forward to 2022 thank God still no joint replacement (knee)

Below is some info on poor diet and obesity is not good for Osteonecrosis. Actually obesity and poor diet cause our body to have more inflammation and that gives us more pain. And can lead to many things.

So see a nutritionist get your diet in check and if you are a compulsive overeater go to some OA meetings , see a counselor what ever it takes to reclaim your health.

I lost about 95 lbs regained 16 during covid lock down. But back on track in May 2022 I am hoping by May 2023 I am at goal weight of 145 -150 lbs. it’s not easy and the older I get ( soon to be 60) the harder it is to lose especially when you have bone and joint issues.

But trying and still no joint replacement.

If you have a problem with food like binge eating, or just an unhealthy relationship with it check out https://oa.org/

See link on study below.

Click to access 1100002678220.pdf

5 years of pics