Do you or a loved one have Osteonecrosis?

If you or a loved one needs moral support while living with or caring for someone with osteonecrosis (also known as avascular necrosis), we invite you to join our Facebook support group. Please remember that this is a safe space for support and encouragement.

Important Guidelines:

  • You must answer all the questions to join the group.
  • We have a zero-tolerance policy for spammers or individuals posting inappropriate content, including any form of advertising or fundraising, such as GoFundMe campaigns.
  • We value all our members privacy and we do not email members of our group 
  • Any negative or unrelated comments will not be tolerated.

Break the rules once, and you will be removed from the group.

If you’re genuinely seeking support related to osteonecrosis, we welcome you to join us!

https://www..facebook.com/groups/deadbonediseaseavN/

Selecting between an Orthopedic Surgeon and a Rheumatologist for Your Musculoskeletal Pain

Selecting between an Orthopedic Surgeon and a Rheumatologist for Your Musculoskeletal Pain: A Comprehensive Guide


Choosing between an orthopedic surgeon and a rheumatologist can be a pivotal decision when seeking treatment for musculoskeletal pain. Usually we also may need a referral from our PCP.

Understanding the differences between these specialists and the conditions they treat is essential for effective pain management and recovery. In todays blog post we’ll delve into the nuances of orthopedic surgery and rheumatology, helping you make an informed choice regarding your healthcare needs.

Orthopedic Surgeon vs. Rheumatologist: Which Specialist to Choose?
When deciding between an orthopedic surgeon and a rheumatologist, several factors come into play. Let’s explore the distinctions between these medical professionals and the conditions they specialize in treating:

Orthopedic Surgeon:
Orthopedic surgeons focus on diagnosing and treating physical ailments related to the musculoskeletal system. Consider consulting an orthopedic surgeon if you experience:

  • Pain resulting from a physical injury or trauma
  • Weight-bearing discomfort (e.g., knee pain, foot pain, during certain movements)
  • Osteoarthritis or joint degeneration
  • Persistent joint pain unresponsive to conservative treatment
  • Need for joint replacement surgeries, particularly in hips and knees

Rheumatologist:
On the other hand, rheumatologists specialize in systemic inflammatory disorders affecting the musculoskeletal system. It’s advisable to seek a rheumatologist’s expertise if you exhibit symptoms such as:

  • Joint or muscle pain accompanied by systemic manifestations like fatigue, fever, or rashes
  • Non-traumatic joint pain or stiffness
  • Pain affecting multiple joints simultaneously

Diving Deeper: Orthopedics and Rheumatology Explained
Understanding the scope of orthopedics and rheumatology provides insights into their respective areas of expertise:

Orthopedics:
Orthopedics encompasses the diagnosis and treatment of musculoskeletal conditions, including bones, muscles, ligaments, and tendons. Orthopedic surgeons specialize in:

  • Identifying structural abnormalities and injuries within the musculoskeletal system
  • Performing surgical interventions to address fractures, ligament tears, and cartilage damage
  • Providing non-surgical therapies like physical therapy, injections like cortisone, prp, stem cell, prolotherapy and medications for pain management and rehabilitation

Rheumatology:
Rheumatology focuses on diagnosing and managing rheumatic diseases, which involve systemic inflammation and immune dysfunction affecting the musculoskeletal system. Rheumatologists are adept at:

  • Conducting comprehensive evaluations and diagnostic tests to identify underlying inflammatory conditions
  • Prescribing disease-modifying medications and biologics to alleviate symptoms and prevent disease progression
  • Collaborating with other specialists, including orthopedic surgeons, for integrated care in complex cases requiring surgical intervention

Orthopedic Treatment vs. Rheumatological Management: A Comparative Analysis
The treatment modalities offered by orthopedic surgeons and rheumatologists differ based on the underlying causes of musculoskeletal pain:

Orthopedic Treatment:
Orthopedic interventions primarily target structural abnormalities and injuries within the musculoskeletal system. These may include:

  • Surgical procedures such as ACL reconstruction, joint replacement surgeries (e.g., hips, knees), and arthroscopic interventions
  • Non-surgical therapies like physical therapy, corticosteroid injections, and orthotic devices for functional support

Rheumatological Management:
Rheumatologists focus on managing systemic inflammatory conditions through targeted medical interventions. These may involve:

  • Pharmacological treatments such as disease-modifying anti-rheumatic drugs (DMARDs), biologic agents, and corticosteroids to suppress inflammation and modify disease progression
  • Multidisciplinary approaches integrating medication management, lifestyle modifications, and supportive therapies for holistic care

Making an Informed Decision: Factors to Consider
When determining whether to consult an orthopedic surgeon or a rheumatologist, consider the following factors:

Identify the Root Cause:
Evaluate whether your pain stems from a traumatic injury, structural abnormality, or underlying inflammatory condition.

Assess Additional Symptoms:
Take note of accompanying systemic symptoms such as fever, fatigue, or skin changes, which may indicate an underlying rheumatic disease.

Seek Specialized Expertise:
Choose a specialist whose skills and experience align with your specific condition and treatment needs.

Emphasize Early Intervention:
Prioritize timely evaluation and intervention to prevent disease progression and optimize treatment outcomes.


Remember choosing between an orthopedic surgeon and a rheumatologist depends on the nature of your musculoskeletal pain, underlying conditions, and treatment goals.

By understanding the roles and expertise of these specialists, you can make an informed decision to address your healthcare needs effectively. Remember, early intervention and personalized care are key to achieving optimal recovery and enhancing your quality of life.

Shining Light on Avascular Necrosis-Osteonecrosis Awareness Day: A Call for Unity

As we approach November 29, a day etched on our calendars as Avascular Necrosis-Osteonecrosis Awareness Day, the enthusiasm is palpable. Originating in states like Ohio, Pennsylvania, Iowa, Georgia, and Tennessee, and several other states this day has grown beyond its regional roots, capturing hearts and minds across the nation. A celebration of resilience, unity, and the strength of those battling this rare disease, the journey has just begun. We still have many states that have yet to recognize this awareness day.

In the spirit of reflection and progress, let’s take a closer look at what Avascular Necrosis-Osteonecrosis is and why it deserves the spotlight. Osteonecrosis occurs when the blood supply to a bone is disrupted, leading to the death of bone tissue. While it can affect anyone at any age, the rarity of this condition often results in delayed diagnosis and limited awareness.

Imagine a disease that doesn’t discriminate by age, gender, or background—a condition that can strike unexpectedly, altering lives in its wake. Avascular Necrosis-Osteonecrosis fits this description, emphasizing the importance of education and advocacy. It’s crucial to understand the pain that accompanies this condition. The affected bones, deprived of essential blood supply, lead to excruciating pain, impacting mobility and quality of life.

This awareness day isn’t just a commemoration; it’s a call to action. The commendable efforts of states like Ohio, Pennsylvania, Iowa, Georgia, and Tennessee have set the stage for a nationwide movement. Proclamations have been issued, voices have been amplified, and the journey towards recognition has begun.

As we celebrate the strides made, it’s essential to acknowledge the work that lies ahead. Advocacy is a journey, not a destination, and the goal is clear: to have all 50 states recognize and celebrate Avascular Necrosis-Osteonecrosis Awareness Day by 2024. This ambitious vision requires a collective effort.

To our esteemed congressmen, senators, and the President of the United States, we extend an invitation to join us in this noble cause. Avascular Necrosis-Osteonecrosis doesn’t discriminate based on political affiliations, and neither should our pursuit of awareness. We implore you to consider the impact of this rare disease on your constituents, urging you to champion the cause for an awareness day in every state.

It’s not a daunting task; it’s an opportunity for bipartisan collaboration, demonstrating a commitment to the health and well-being of the American people. A simple proclamation can go a long way in raising awareness, fostering empathy, and providing support to those affected by Avascular Necrosis-Osteonecrosis.

In the coming year, let’s collectively work towards making November 29 a day of national significance. Together, we can ensure that the stories of those touched by Avascular Necrosis-Osteonecrosis are heard, recognized, and celebrated from coast to coast. The journey has just begun, and with your support, we can light up the map with awareness, compassion, and unity.

Sincerely

Deb Andio

Founder

Avascular Necrosis-Osteonecrosis SuppooInt’l

http://www.avascularnecrosiseducation.com

“Like the majestic Phoenix that rises from the ashes, those of us living with Osteonecrosis are on a journey of resilience and hope. As we continue to advocate for awareness, we believe that our Awareness Day will soon shine worldwide, illuminating the path for understanding, support, and compassion. Together, our voices will soar, echoing the strength that lies within each of us.”

Join my new Clubhouse Room

All things arthritis

Since late stage Osteonecrosis leads to severe osteoarthritis I feel they are under the same umbrella although different in some ways and the same in other ways.

Link to join The Clubhouse New spot

https://www.clubhouse.com/room/wg5c5DG1G8iDl6pVd:EBeGc6yiEqlOHOXuTQYzP18p7uhtKpCBSkfvsgL7w-U?utm_medium=ch_room_pt&utm_campaign=YEvlhG2P4LoHYqbG1UhgLw-488396

Poor Diet and Being Overweight doesn’t help Osteonecrosis

I lived for 20 years with osteoarthritis but nothing was as scary and painful as my Osteonecrosis diagnosis. I gained a lot of weight because I. Oils no longer work and I won’t lie I stuffed myself with food to comfort myself. I went up to 293 lbs. I can’t believe I let myself get that big. Something had to change because I was too fat for a joint replacement and honestly I didn’t want one. So I had to do something, so I changed the way I ate I noticed a great improvement. People thought I was crazy but I had less pain.

I didn’t quit everything cold Turkey. I did stop smoking cold Turkey best decision I ever made.

I added more plants raw and cooked and lessened the meat intake. I started out having meatless Monday Wednesday and Friday soon it was meatless Saturday also.

I cut out 85% of all the crackers and cheese puffs all the stuff that we love but know it’s not real food. When I wanted chips I made a baked potato or a baked sweet potato. When I wanted chips and dip I made my own bean dip and hummus and dipped peppers, celery and sometimes a few crackers. I wasn’t perfect but I really began eating to live not living to eat.

My cholesterol dropped to fantastic numbers I went from total cholesterol of 210 to a total of 172 in a matter of months then down to 158. My good cholesterol went from 38 to 60. So I was on the right path. It wasn’t easy, it still isn’t easy because let’s face it junk food is every place. My next post I will post about how to eat healthy at fast food restaurants and yummy food fast that’s healthy!!

I became a flexitarian meaning I ate mostly plant based and once a week ate chicken and fish. Backed or grilled .

Good bye to greasy fried food, I also cut out 80 percent of processed junk .

Stopped all cola and sugary drinks I never was much of a pop drinker.

Many thought this was crazy and would not do much. But it did.

Then in 2019 there was a study that also confirmed similar findings .

I got off blood pressure medication and my bones didn’t feel like a tourniquet around them.

I also with the ok if my Ortho started taking Cureamed curcumin 375 1-2 times a day for 2 weeks then just once a day. It seemed to help my pain and thinned my blood some. So if you take blood thinners don’t just try this.

Always talk to your doctor before doing anything new.

Fast forward to 2022 thank God still no joint replacement (knee)

Below is some info on poor diet and obesity is not good for Osteonecrosis. Actually obesity and poor diet cause our body to have more inflammation and that gives us more pain. And can lead to many things.

So see a nutritionist get your diet in check and if you are a compulsive overeater go to some OA meetings , see a counselor what ever it takes to reclaim your health.

I lost about 95 lbs regained 16 during covid lock down. But back on track in May 2022 I am hoping by May 2023 I am at goal weight of 145 -150 lbs. it’s not easy and the older I get ( soon to be 60) the harder it is to lose especially when you have bone and joint issues.

But trying and still no joint replacement.

If you have a problem with food like binge eating, or just an unhealthy relationship with it check out https://oa.org/

See link on study below.

Click to access 1100002678220.pdf

5 years of pics

Avascular Necrosis-Osteonecrosis Awareness Day 2021

Hard to believe another awareness day has arrived.

It’s been a struggle and challenge to get all 50 states to issue a proclamation: but being persistent is becoming rewarding. We now have about 1/2 the USA on board as 29 November being AVN-ON

To all those living with Osteonecrosis like myself, know I will not give up until every state has issued the proclamation.

We live with pain and uncertainty every day. But I assure you I will not give up until it’s recognized in every state.

Happy AVN-ON Awareness Day.

Wish you all a pain free day

Avascular Necrosis Mask

Many requested masks as so many cannot find them , so I contacted a local shop in my area and we made these two designs. The mask are washable

I don’t get paid anything for or a portion of the masks just doing this as a way to help those wearing a mask support the cause of Osteonecrosis aka Avascular Necrosis.

If you wish to purchase here is info. And they ship worldwide

They are closed on Sundays and Holidays

Afterburner FX

3600 Schotten Road

Hubbard Ohio 44425

3305347653 phone

Afterburner FX

Mask design

@Debla2020

Thank You Arizona

The good news keeps rolling in

Rare Disease Day is February 29 usually 28 on non leap years.

So as you know I have been working very hard on November 29 being National – Avascular Necrosis Osteonecrosis awareness day and all states have come on board so far but still waiting to hear from maybe 10 states.

They are doing all they can. And I am so pleased many states have issues proclamations for November 29 and many still are in the process.

Today The State of Arizona sent a proclamation for rare disease awareness we got the entire week February 20-27

And they will also be recognizing November 29

So blessed.

Hard work pays off

Thank you State of Arizona

Deb Andio

Founder Avascular Necrosis Osteonecrosis Support Int’l

#Osteonecrisis #AvascularNecrosis

Radionuclide bone scan to diagnose or confirm Avascular Necrosis-Osteonecrosis

Radionuclide bone scan. This nuclear imaging technique uses a very small amount of radioactive material, which is injected into the blood to be detected by a scanner. This test shows blood flow to the bone and cell activity within the bone.

Overview

A bone scan is a nuclear imaging test that helps diagnose and track several types of bone disease. Your doctor may order a bone scan if you have unexplained skeletal pain, a bone infection or a bone injury that can’t be seen on a standard X-ray.

Why it’s done

Images of bone scans depicting hot spots

Hot spots

If you have unexplained bone pain, a bone scan might help determine the cause. The test is very sensitive to any difference in bone metabolism. The ability to scan the entire skeleton makes a bone scan very helpful in diagnosing a wide range of bone disorders, including:

Fractures

Arthritis

Paget’s disease of bone

Cancer originating in bone

Cancer that has metastasized to bone from a different site

Infection of the joints, joint replacements or bones (osteomyelitis)

Impaired blood supply to bones or death of bone tissue (avascular necrosis)

Thank You Iowa

Hi I’m Deborah Andio the founder of Avascular Necrosis Osteonecrosis Support Int’l and I am honored and proud to say another state is on board recognizing Avascular Necrosis -Osteonecrosis

A great big thank you to Governer Kim Reynolds the Governor of the state of Iowa for not just recognizing Avascular Necrosis Osteonecrosis as Rare but issuing the proclamation for Rare Disease Month in February 2020 and also Honoring and sending a proclamation for Avascular Necrosis Osteonecrosis day November29.