Thank You Arizona

The good news keeps rolling in

Rare Disease Day is February 29 usually 28 on non leap years.

So as you know I have been working very hard on November 29 being National – Avascular Necrosis Osteonecrosis awareness day and all states have come on board so far but still waiting to hear from maybe 10 states.

They are doing all they can. And I am so pleased many states have issues proclamations for November 29 and many still are in the process.

Today The State of Arizona sent a proclamation for rare disease awareness we got the entire week February 20-27

And they will also be recognizing November 29

So blessed.

Hard work pays off

Thank you State of Arizona

Deb Andio

Founder Avascular Necrosis Osteonecrosis Support Int’l

#Osteonecrisis #AvascularNecrosis

Thank You Proud Moment

Thank you to Youngstown Ohio Mayor Jamael Tito Brown and Senator Michael Rulli and Senate President Larry Obhof

What an honor

Help me raise awareness today and please like and share this post.

Thank You.

1st annual

#AvascularNecrosis #Osteonecrosis

#AwarenessDay #November29

AvascularNecrosis/Osteonecrosis Support Int’l

https://www.vindy.com/news/local-news/2019/11/city-state-recognize-poland-woman-with-rare-disease/

Official Proclamation Avascular Necrosis-Osteonecrosis Awareness Day November 29

Finally Avascular Necrosis-Osteonecrosis has an official awareness date.

The date is November 29

I have been working on proclamations for several months and I am in the process of getting the awareness day Nationally recognized as well.

I’m so grateful that our elected officials took the time to talk to me.

And set a date for AVN-ON awareness

I have heard back from several officials that will also be adopting November 29 .

I have been advocating for over 5 years on Avascular Necrosis -Osteonecrosis and I am proud and grateful that our elected officials are also recognizing this awareness day.

What is a proclamation?

A proclamation is a formal way to make a public announcement or declaration. Government officials, such as mayors and state legislators, often issue proclamations to announce upcoming events or celebrations or to increase public awareness of particular issues.

I am proud to say I was issued a proclamation by my local Mayor of Youngstown Ohio

And also by Senator Michael Rulli of Ohio.

I have heard from Washington DC and it’s a longer procedure but it’s being looked at.

Right Now AVN-ON falls under the rare disease / disorder category.

In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people. This definition was created by Congress in the Orphan Drug Act of 1983. Rare diseases became known as orphan diseases because drug companies were not interested in adopting them to develop treatment

Well I am hoping that now that AVN is getting recognition we can get more research to help all of us that are dealing with this painful condition.

Thank you to

Senator Michael Rulli -Ohio

and

Mayor Jamael Tito Brown – Youngstown Ohio

For helping us who suffer finally get the awareness day we deserve

God Bless You and Thank You.

Official Proclamation Avascular Necrosis -Osteonecrosis Awareness Day is November 29,2019 and every year after.