November 29: Osteonecrosis (Avascular Necrosis) Awareness Day

November 29: Osteonecrosis (Avascular Necrosis) Awareness Day

Shining a Light on a Silent but Life-Changing Bone Disease

Every year, November 29 marks Osteonecrosis Awareness Day—a day dedicated to educating, empowering, and supporting the millions of people worldwide living with osteonecrosis, also known as avascular necrosis (AVN).

Osteonecrosis is a painful, progressive condition where bone tissue dies due to loss of blood supply. Without proper blood flow, the affected bone weakens, collapses, and can lead to severe arthritis and disability. While many people have never heard of it until diagnosis, AVN is far more common than most realize.

Today, we honor the fighters, the caregivers, and the advocates raising their voices so no one has to face this disease alone.

What Causes Osteonecrosis?

Osteonecrosis can develop for many reasons, but the underlying issue is always the same: interrupted or reduced blood flow to the bone.

Here are some of the most common causes and risk factors:

  1. Blood Clotting Disorders

When the tiny vessels supplying bone become blocked by clots, the bone tissue can’t receive oxygen. Conditions that increase clotting can drastically raise the risk of AVN.

  1. Injury or Trauma

A broken bone, dislocation, or major joint injury can damage blood vessels and trigger osteonecrosis—sometimes months or years later.

  1. Steroid Use

High-dose or long-term corticosteroid use is one of the most common causes of non-traumatic AVN. Steroids can raise lipid levels and alter marrow pressure, reducing blood flow.

  1. Excessive Alcohol Use

Heavy drinking increases fatty deposits in the blood, which can block circulation to the bone over time.

  1. Chemotherapy and Radiation

Cancer treatments can weaken bone structure and reduce blood flow, increasing the risk of AVN during or after treatment.

  1. High Cholesterol

Elevated lipids can thicken and narrow blood vessels, interfering with oxygen delivery to bone tissue.

  1. Smoking

Nicotine constricts blood vessels, reduces oxygen circulation, and slows healing—making AVN more likely and more aggressive.

  1. Idiopathic Cases (No Known Cause)

Some people develop osteonecrosis without any identifiable reason. This can be one of the most frustrating parts of the disease.

Signs & Symptoms to Watch For

Osteonecrosis often begins subtly, but early detection can slow progression.

Common symptoms include:
• Deep joint pain (often hip, knee, shoulder, ankle)
• Pain with weight-bearing
• Limited range of motion
• Night pain
• A limp or stiffness

Early diagnosis is critical—and MRI is the gold standard for catching AVN before collapse.

Treatment Options for Osteonecrosis

The best treatment depends on the stage of the disease and the joint involved. The earlier AVN is found, the more joint-preserving options are available.

Regenerative & Non-Surgical Treatments

These may help slow or stop progression in early stages:

  • PRP (Platelet-Rich Plasma)
    Uses the patient’s own platelets to stimulate healing and reduce inflammation.
  • Stem Cell Therapy
    Mesenchymal stem cells can support bone regrowth and improve blood flow.
  • A2M (Alpha-2-Macroglobulin Therapy)
    A natural protein that can help control inflammation and breakdown of cartilage.
  • Physical Therapy
    Helps maintain strength, mobility, and joint function while reducing pain.
  • Hyperbaric Oxygen Therapy (HBOT)
    High-pressure oxygen may help restore blood supply and support bone repair.

Surgical Options When Damage Has Advanced

  • Core Decompression

A surgeon removes part of the inner bone to reduce pressure and encourage new blood flow.

  • Bone Grafting

Healthy bone is transplanted to replace damaged tissue.

  • Total Joint Replacement

In later stages, when collapse or arthritis has occurred, joint replacement may provide pain relief and restore mobility.
Hips, knees, and shoulders are the most commonly replaced joints in advanced AVN.

Why Awareness Matters

Far too many people are diagnosed late, when the bone has already collapsed—limiting treatment choices and increasing the likelihood of joint replacement.

Awareness means:
• earlier detection
• more treatment options
• better outcomes
• improved quality of life

By sharing information, supporting research, and elevating patient voices, we help others find answers faster and feel less alone.

On this Osteonecrosis Awareness Day, let’s stand together—patients, caregivers, advocates, and medical professionals—and continue to push for earlier diagnosis, better treatments, and more compassion for those living with AVN.

Whether your journey began from an injury, steroids, alcohol, a medical treatment, or for no known reason…
your story matters, your pain is real, and your strength is inspiring.

You are not alone, and your voice raises awareness that could change someone else’s life.

AVN #osteonecrosis #awareness #bonedeath #AvascularNecrosis

http://www.joint-purpose.com
http://www.avascularnecrosiseducation.com

Happy Saint Patrick’s Day

Happy Saint Patrick’s Day: Embracing the Luck of the Irish and a Positive MindsetHappy Saint Patrick’s Day, everyone! 🍀 As we celebrate this vibrant day filled with emerald green, shamrocks, and the promise of good fortune, I want to take a moment to send heartfelt wishes your way. May you have a happy, healthy, and prosperous day ahead, filled with joy and positivity. Remember, all positive luck is Irish, and today is a perfect opportunity to focus on what brings us happiness!

Acknowledging the Challenges

For many of us, especially those living with conditions like osteoarthritis, spondylolisthesis, or osteonecrosis, each day can present its own set of challenges. Joint pain and discomfort can often make even the simplest tasks feel overwhelming. On days like today, it’s essential to recognize that while we celebrate, there may also be struggles beneath the surface.

It’s okay to acknowledge that living with these conditions can be tough. The journey may not always be easy, but taking one day at a time can help us stay grounded. If you find yourself feeling fatigued today, please don’t feel guilty for resting. Your body deserves care and compassion, especially when dealing with chronic pain.

The Importance of Self-Care

Self-care is not just a trendy buzzword; it’s a vital part of maintaining our well-being. Whether that means taking a moment to unwind with a good book, enjoying a warm bath, or simply allowing yourself the grace to slow down, prioritize your needs. Remember, every small act of kindness towards yourself counts and contributes to a more positive mindset.

Finding the Silver Lining

On this festive day, let’s also focus on the silver linings that accompany our challenges. It’s easy to get bogged down by negativity and pain, but each day also brings opportunities for joy and gratitude. Surround yourself with uplifting people, indulge in activities that make you smile, and practice gratitude for the little things that bring light into your life.

Celebrating Our Journey

As we raise a glass to toast the spirit of Saint Patrick’s Day, let’s celebrate not only our victories but also our resilience. It’s a day for laughter, connection, and a reminder of the strength we possess to face our hurdles. May the luck of the Irish be with you today and always, filling your life with health, happiness, and an abundance of positive energy.

Cheers to taking it one day at a time, embracing the journey, and finding joy amidst the challenges! Happy Saint Patrick’s Day! 🍀✨

Living a Life of Chronic Gratitude: Finding Blessings in Every Moment

I wanted to share this here as well, because even though this isn’t a typical blog page, it is an educational page for awareness for chronic pain, osteonecrosis Arthritis, and any chronic pain of any kind but I started this to focus on bone health, but here’s a blog post from my current blogs that I wanted to share with you because I think it sometimes makes our life a little easier

In the journey of life, we are all bound to encounter trials and tribulations, whether we navigate through days filled with sunshine or weather storms of adversity. For individuals like myself, living with chronic pain has become a constant companion, although since moving to Florida it’s been less, fir 30 years it’s been a silent shadow that lingers in the background of daily existence. Yet, amidst the challenges and uncertainties that pain brings, I have learned to embrace a mindset of chronic gratitude – an attitude that transcends circumstances and illuminates even the darkest moments with rays of hope and appreciation.

As the author of the blog “ChronicallyGratefulDebla,” aka now called http://www.Joint-Purpose.com and also http://www.joyful-echoes.com

I am on a personal sojourn towards discovering the profound beauty of being grateful in both the good times and the not-so-good times. This journey has taught me that gratitude is not just a fleeting emotion evoked by fleeting circumstances; it is a state of being, a conscious decision to acknowledge and appreciate the blessings that surround us, no matter how small or seemingly insignificant they may appear.

Living with chronic pain has its own set of challenges – the unrelenting ache, the limitations it imposes, the moments of despair when it seems like the pain will never end. However, through the lens of chronic gratitude, I have come to understand that even in the midst of pain, there are still reasons to be thankful. It is in those moments of discomfort and struggle that we discover our inner strength, our resilience, and our capacity to endure.

Whether we are working full-time, part-time, or currently unemployed, the trials and tribulations of life do not discriminate. They touch us all in different ways, shaping our experiences and testing our resolve. It is during these times that being grounded in faith becomes essential, serving as a beacon of light in the darkness, a source of comfort and guidance when the road ahead seems uncertain.

Being chronically grateful does not mean denying the challenges we face or pretending that everything is perfect. Instead, it is an acknowledgment of the complexities of life, a recognition that even in the midst of pain and adversity, there are still reasons to give thanks. It is an act of defiance against despair, a declaration of hope in the face of uncertainty.

So, as I navigate the highs and lows of my journey, I choose to remain chronically grateful, blessed, and thankful. I choose to see the beauty in every moment, to find joy in the midst of sorrow, and to embrace each day as a gift, no matter what it may bring. Because in the end, gratitude is not just a feeling – it is a way of life, a testament to the resilience of the human spirit and the power of faith to sustain us through the darkest of times.

Shining Light on Avascular Necrosis-Osteonecrosis Awareness Day: A Call for Unity

As we approach November 29, a day etched on our calendars as Avascular Necrosis-Osteonecrosis Awareness Day, the enthusiasm is palpable. Originating in states like Ohio, Pennsylvania, Iowa, Georgia, and Tennessee, and several other states this day has grown beyond its regional roots, capturing hearts and minds across the nation. A celebration of resilience, unity, and the strength of those battling this rare disease, the journey has just begun. We still have many states that have yet to recognize this awareness day.

In the spirit of reflection and progress, let’s take a closer look at what Avascular Necrosis-Osteonecrosis is and why it deserves the spotlight. Osteonecrosis occurs when the blood supply to a bone is disrupted, leading to the death of bone tissue. While it can affect anyone at any age, the rarity of this condition often results in delayed diagnosis and limited awareness.

Imagine a disease that doesn’t discriminate by age, gender, or background—a condition that can strike unexpectedly, altering lives in its wake. Avascular Necrosis-Osteonecrosis fits this description, emphasizing the importance of education and advocacy. It’s crucial to understand the pain that accompanies this condition. The affected bones, deprived of essential blood supply, lead to excruciating pain, impacting mobility and quality of life.

This awareness day isn’t just a commemoration; it’s a call to action. The commendable efforts of states like Ohio, Pennsylvania, Iowa, Georgia, and Tennessee have set the stage for a nationwide movement. Proclamations have been issued, voices have been amplified, and the journey towards recognition has begun.

As we celebrate the strides made, it’s essential to acknowledge the work that lies ahead. Advocacy is a journey, not a destination, and the goal is clear: to have all 50 states recognize and celebrate Avascular Necrosis-Osteonecrosis Awareness Day by 2024. This ambitious vision requires a collective effort.

To our esteemed congressmen, senators, and the President of the United States, we extend an invitation to join us in this noble cause. Avascular Necrosis-Osteonecrosis doesn’t discriminate based on political affiliations, and neither should our pursuit of awareness. We implore you to consider the impact of this rare disease on your constituents, urging you to champion the cause for an awareness day in every state.

It’s not a daunting task; it’s an opportunity for bipartisan collaboration, demonstrating a commitment to the health and well-being of the American people. A simple proclamation can go a long way in raising awareness, fostering empathy, and providing support to those affected by Avascular Necrosis-Osteonecrosis.

In the coming year, let’s collectively work towards making November 29 a day of national significance. Together, we can ensure that the stories of those touched by Avascular Necrosis-Osteonecrosis are heard, recognized, and celebrated from coast to coast. The journey has just begun, and with your support, we can light up the map with awareness, compassion, and unity.

Sincerely

Deb Andio

Founder

Avascular Necrosis-Osteonecrosis SuppooInt’l

http://www.avascularnecrosiseducation.com

“Like the majestic Phoenix that rises from the ashes, those of us living with Osteonecrosis are on a journey of resilience and hope. As we continue to advocate for awareness, we believe that our Awareness Day will soon shine worldwide, illuminating the path for understanding, support, and compassion. Together, our voices will soar, echoing the strength that lies within each of us.”

Osteonecrosis- and New Logo Designs More to Come.

Hey everyone! Today I want to talk about a topic that is close to my heart – osteonecrosis. Living with this rare condition can be really challenging, both physically and mentally. Osteonecrosis occurs when there is a lack of blood supply to the bone and joint, which can eventually lead to the collapse of the bone and the need for a joint replacement. It’s a tough journey, but remember, you’re not alone.

There are various underlying causes for osteonecrosis, including trauma to the bone or joint, blood clotting disorders, autoimmune conditions, cancer treatments like radiation and chemotherapy, as well as certain diseases like vasculitis, lupus, HIV, and sickle cell anemia. Lifestyle factors such as smoking and excessive drinking can also contribute to the development of osteonecrosis. Additionally, the chronic use of corticosteroids is a known cause for many individuals.

However, it’s crucial to note that not everyone who experiences these factors will develop osteonecrosis. Each person’s journey with this condition is unique, and it’s important not to blame ourselves or feel guilty for something that may be beyond our control.

But here’s the thing – we need better treatment options for osteonecrosis. Having access to alternative medications like platelet-rich plasma (PRP) therapy can make a significant difference in managing this condition and potentially preventing the need for joint replacements. PRP therapy involves using a concentrated form of a patient’s own blood to promote healing and regeneration in the affected area.

Unfortunately, insurance companies often don’t cover PRP therapy or other alternative treatments for osteonecrosis. This makes it challenging for individuals to explore all available options to manage their condition effectively. We need to raise awareness about the importance of these treatments and advocate for insurance coverage, ensuring that everyone has access to the best possible care.

So, let’s come together and spread awareness about osteonecrosis. Share your experiences and knowledge, support one another, and join the fight for better treatment options. Together, we can make a difference in the lives of those living with this condition. Don’t forget to use the hashtags #OsteonecrosisAwareness and #JointHealthMatters to amplify our message.

Remember, everyone’s journey is unique, but together we can make a difference. Let’s continue to spread awareness and support one another in this fight against osteonecrosis. Stay strong, warriors! 💪🙌

The Guardian

I’m excited to share with you one of the new logo designs for Osteonecrosis awareness! Introducing “The Guardian” – a symbol of strength, protection, and unity in the fight against this rare condition.

The logo features a bold and powerful image of a guardian angel with outstretched wings, symbolizing the support and protection we offer to those affected by osteonecrosis. The angel is seen holding a bone, representing the importance of bone health and the need to raise awareness about this condition.

The color palette chosen for the logo reflects the resilience and determination of individuals living with osteonecrosis. Shades of blue and purple evoke a sense of calmness, hope, and empowerment, while the green is for life and the touch of gold -white adds a touch of elegance and sophistication.

The Guardian logo aims to capture attention and spark curiosity, encouraging individuals to learn more about osteonecrosis and become advocates for better treatment options and insurance coverage. By using this logo, we are creating a unified and recognizable symbol that can be shared across social media platforms, websites, and events, creating a sense of community and solidarity.

As an influencer, it’s essential for me to use my platform to spread awareness and support those affected by osteonecrosis. I encourage you all to join me in using the hashtag #GuardianOfBoneHealth when sharing posts related to this condition and the new logo. Let’s come together and make a positive impact in the lives of individuals battling osteonecrosis.

Stay strong and keep fighting, warriors! 💙💜💚

Logo 2 The Multi-Phoenix

Also is

The phoenix is a powerful symbol of transformation and resilience, which aligns perfectly with the journey of those living with osteonecrosis. By incorporating the phoenix logo into our social media posts, we can further emphasize the strength and determination of individuals battling this condition.

Let’s use the hashtag #RisingStrong to accompany posts featuring the phoenix logo. Together, we can inspire hope and encourage others to rise above challenges and embrace their own inner strength.

If you’re interested in using the phoenix logo on your social media platforms, feel free to reach out to me for the high-resolution image. Let’s continue raising awareness and supporting one another in this journey of resilience.

Stay powerful, warriors! 🔥💪

Join my new Clubhouse Room

All things arthritis

Since late stage Osteonecrosis leads to severe osteoarthritis I feel they are under the same umbrella although different in some ways and the same in other ways.

Link to join The Clubhouse New spot

https://www.clubhouse.com/room/wg5c5DG1G8iDl6pVd:EBeGc6yiEqlOHOXuTQYzP18p7uhtKpCBSkfvsgL7w-U?utm_medium=ch_room_pt&utm_campaign=YEvlhG2P4LoHYqbG1UhgLw-488396

Avascular Necrosis-Osteonecrosis Awareness Day 2021

Hard to believe another awareness day has arrived.

It’s been a struggle and challenge to get all 50 states to issue a proclamation: but being persistent is becoming rewarding. We now have about 1/2 the USA on board as 29 November being AVN-ON

To all those living with Osteonecrosis like myself, know I will not give up until every state has issued the proclamation.

We live with pain and uncertainty every day. But I assure you I will not give up until it’s recognized in every state.

Happy AVN-ON Awareness Day.

Wish you all a pain free day

Osteonecrosis and Organ transplant

Osteonecrosis is a well-recognized complication associated with organ transplantation.

It is a pathological condition characterized by the death of the cellular constituents of bone and marrow. The process of aseptic bone necrosis is associated with glucocorticoid use, and the mechanism by which glucocorticoids initiate the pathologic process has recently been elucidated.

Rates are particularly high in patients with systemic lupus erythematosus. The incidence of osteonecrosis also increases in patients on dialysis.

The exact prevalence of osteonecrosis after organ transplantation is, however, difficult to assess as many cases are clinically silent.

The most common symptom of osteonecrosis is hip pain that is usually deep in nature, localized to the groin with occasional radiation down the thigh to the knee.

Symptoms are usually exacerbated by physical activity and weight bearing and relieved by rest. In the late stages of osteonecrosis, pain is often present at rest, and patients may develop a limp, as they are no longer able to bear weight on the affected joint.

Osteonecrosis affecting the bone beneath a weight-bearing joint surface is associated with a significant risk of developing a subarticular fracture, which appears to initiate the symptoms.

Optimizing the dose of glucocorticoids has led to a significant reduction in the incidence of osteonecrosis post-transplantation. Substituting these agents entirely with calcineurin inhibitors may decrease this complication of the transplantation process even further. Early diagnosis using magnetic resonance imaging is essential for the success of available surgical interventions

Reference: https://www.sciencedirect.com/science/article/pii/B9780121835026500213

https://online.boneandjoint.org.uk/doi/full/10.1302/0301-620x.89b12.19400?journalCode=bjj&

http://www0.sun.ac.za/aotc/general/renal/renal.php

Out with the old and in with the new

Being an advocate for bone and joint pain and personally living with osteoarthritis osteonecrosis and spondylolisthesis pain .

I saw our community struggle in new and ways besides living and dealing with daily pain.

People suddenly couldn’t access routine care because of lockdowns, fear and added anxiety.

They became more isolated than ever before. They and their family members faced job losses and financial hardship.

As an advocate for arthritis and a facilitator for my local LIVE YES Connect Group, I had to cancel or postpone in-person programs and events.

But on the plus side we went virtual on Zoom

Some members and their families faced added strain, whether dealing with virtual school or safety concerns for loved ones in nursing homes.

It’s a year most are happy to see come to an end.

But as a person with pain, I am always compelled to find silver linings. Even in the mist of challenging of times.

In 2020, I got to travel to Washington D.C participate in a focus group and then speak on Capital Hill.

I met some fantastic people from our state representatives to other leaders and advocates who work so hard to create a strong support system for so many causes and conditions.

I got to stay in a great city and tour the beautiful historical city of Washington D.C

We made great strides in accessibility, as health care system finally embraced telehealth and more companies allowed remote work.

Many disabled now gave hope to possibly getting a part time job working from home now because we see it is doable.

We seen a President work tirelessly to get pharmaceutical companies to create a vaccine quickly that will be safe for the USA and world.

We gave witnessed the power of science and innovation with the development of promising treatments and vaccines.

We saw our neighbors and communities come together to support one another in their time of need.

Despite the news only showing negativity there was a lot of positive happening.

2020 shown how resilient we are. And to never lose faith. Be grateful for everyday.

I don’t know what 2021 will bring;

I’m hoping it will be a fantastic year.

I just want to Thank you for your support, and following me on IG, Blog, and all social media platforms I promise to bring you current and uplifting information in 2021 and I wish you all a safe, healthy, prosperous and happy new year