Tag: Strong

Out with the old and in with the new

Being an advocate for bone and joint pain and personally living with osteoarthritis osteonecrosis and spondylolisthesis pain .

I saw our community struggle in new and ways besides living and dealing with daily pain.

People suddenly couldn’t access routine care because of lockdowns, fear and added anxiety.

They became more isolated than ever before. They and their family members faced job losses and financial hardship.

As an advocate for arthritis and a facilitator for my local LIVE YES Connect Group, I had to cancel or postpone in-person programs and events.

But on the plus side we went virtual on Zoom

Some members and their families faced added strain, whether dealing with virtual school or safety concerns for loved ones in nursing homes.

It’s a year most are happy to see come to an end.

But as a person with pain, I am always compelled to find silver linings. Even in the mist of challenging of times.

In 2020, I got to travel to Washington D.C participate in a focus group and then speak on Capital Hill.

I met some fantastic people from our state representatives to other leaders and advocates who work so hard to create a strong support system for so many causes and conditions.

I got to stay in a great city and tour the beautiful historical city of Washington D.C

We made great strides in accessibility, as health care system finally embraced telehealth and more companies allowed remote work.

Many disabled now gave hope to possibly getting a part time job working from home now because we see it is doable.

We seen a President work tirelessly to get pharmaceutical companies to create a vaccine quickly that will be safe for the USA and world.

We gave witnessed the power of science and innovation with the development of promising treatments and vaccines.

We saw our neighbors and communities come together to support one another in their time of need.

Despite the news only showing negativity there was a lot of positive happening.

2020 shown how resilient we are. And to never lose faith. Be grateful for everyday.

I don’t know what 2021 will bring;

I’m hoping it will be a fantastic year.

I just want to Thank you for your support, and following me on IG, Blog, and all social media platforms I promise to bring you current and uplifting information in 2021 and I wish you all a safe, healthy, prosperous and happy new year

Thank You Proud Moment

Thank you to Youngstown Ohio Mayor Jamael Tito Brown and Senator Michael Rulli and Senate President Larry Obhof

What an honor

Help me raise awareness today and please like and share this post.

Thank You.

1st annual

#AvascularNecrosis #Osteonecrosis

#AwarenessDay #November29

AvascularNecrosis/Osteonecrosis Support Int’l

https://www.vindy.com/news/local-news/2019/11/city-state-recognize-poland-woman-with-rare-disease/

I forgive but won’t forget

I forgive you….For showing me who you really are.

On one hand, I get it. Who would want to deal with this? Who would want a friend that plans to go to lunch then changes their mind because the pain in their body is just to much that day.

Who would want to hang out with a friend who’s bones always hurt and was afraid to make plans , because they didn’t want to let you down if their body was in pain again.

If you don’t want to talk to me for a while to focus on your own issues, or just to unwind and be alone for a while, you are entirely valid and you don’t have to justify that to me. Trust me I understand

On the other hand, some of you really hurt my feelings. When you needed me before I had my health issues I was always there for you. I’d pick you up late at night if you drank to much, I’d take you shopping when your car was in the shop. Make you soup when you were sick.

You hurt me by leaving me when I needed you most.

You hurt me by making me feel like my condition is to much for you to bear than it is for to live with.

You hurt my feelings by making me feel alone, different and excluded when all I wanted was to feel included and just the same as everybody else.

Maybe I should be thanking you instead of feeling a bit sad.

I thank those of you who went about leaving with human decency, for being honest with me, and for admitting that your own issues are the priority for you, as they should be.

I thank you for taking time away from me to focus on yourself and work on your own health. I thank those of you who went about it in a rude way for you revealed your true colors to me, and I feel relieved I don’t have to waste each other’s time.

Finally, I thank those of you who have never left. Those of you who are still here, calling me , asking me to get coffee etc….