Tag: Osteonecrosis

Happy Holiday !!

Happy holidays, everyone! I hope this blog post finds you well and in good spirits. I know living with osteonecrosis and arthritis can be a pain, literally and figuratively. But don’t let that stop you from enjoying this festive season. Here are some tips to help you manage your pain and have a merry time.

  • Eat more anti-inflammatory foods. Inflammation is a major cause of pain in many diseases, so eating foods that fight inflammation can help you feel better. Some examples are berries, nuts, leafy greens, fish, olive oil, and turmeric.
  • Get moving. Exercise can improve your blood circulation, reduce stiffness, and boost your mood. Even just walking for 5 minutes 2-3 times a day can make a difference. But the more you move, the better you’ll feel.
  • Practice self-care. Take some time to pamper yourself and do things that make you happy. Whether it’s reading a book, listening to music, watching a movie, or taking a nap, do something that relaxes you and brings you joy.
  • Meditate for better mental health. Meditation can help you cope with stress, anxiety, and depression. It can also help you focus on the present moment and appreciate the positive aspects of your life. You can use an app, a video, or just your own breath to meditate for a few minutes every day.
  • Use heat wraps when you hurt. Heat can soothe sore muscles and joints and ease pain. You can use heat wraps, heating pads, hot water bottles, or warm baths to apply heat to the affected areas. Everyone may be different, so find what works best for you.
  • Don’t overdo it. Allow others to help you when you need it. Don’t feel guilty or ashamed to ask for help or accept help from others. You are not a burden, you are a blessing. Remember that you are not alone in this journey.
  • Add a few positive quotes to your day. Positive quotes can inspire you, motivate you, and lift your spirits. You can write them down, say them out loud, or display them somewhere you can see them often. Here are some examples:
  • “The most important thing is to enjoy your life – to be happy – it’s all that matters.” – Audrey Hepburn
  • “The pain you feel today will be the strength you feel tomorrow.” – Unknown
  • “Happiness is not something ready made. It comes from your own actions.” – Dalai Lama
  • “Be the change that you wish to see in the world.” – Mahatma Gandhi
  • “You are braver than you believe, stronger than you seem, and smarter than you think.” – A.A. Milne

Merry Christmas!! I wish you all a blessed holiday and a happy new year!

Be sure to check out

http://www.joyfu-echoes.com

http://www.joint-purpose.com

http://www.the-buzz-club.com

http://www.avascularnecrosiseducation.com

Shining Light on Avascular Necrosis-Osteonecrosis Awareness Day: A Call for Unity

As we approach November 29, a day etched on our calendars as Avascular Necrosis-Osteonecrosis Awareness Day, the enthusiasm is palpable. Originating in states like Ohio, Pennsylvania, Iowa, Georgia, and Tennessee, and several other states this day has grown beyond its regional roots, capturing hearts and minds across the nation. A celebration of resilience, unity, and the strength of those battling this rare disease, the journey has just begun. We still have many states that have yet to recognize this awareness day.

In the spirit of reflection and progress, let’s take a closer look at what Avascular Necrosis-Osteonecrosis is and why it deserves the spotlight. Osteonecrosis occurs when the blood supply to a bone is disrupted, leading to the death of bone tissue. While it can affect anyone at any age, the rarity of this condition often results in delayed diagnosis and limited awareness.

Imagine a disease that doesn’t discriminate by age, gender, or background—a condition that can strike unexpectedly, altering lives in its wake. Avascular Necrosis-Osteonecrosis fits this description, emphasizing the importance of education and advocacy. It’s crucial to understand the pain that accompanies this condition. The affected bones, deprived of essential blood supply, lead to excruciating pain, impacting mobility and quality of life.

This awareness day isn’t just a commemoration; it’s a call to action. The commendable efforts of states like Ohio, Pennsylvania, Iowa, Georgia, and Tennessee have set the stage for a nationwide movement. Proclamations have been issued, voices have been amplified, and the journey towards recognition has begun.

As we celebrate the strides made, it’s essential to acknowledge the work that lies ahead. Advocacy is a journey, not a destination, and the goal is clear: to have all 50 states recognize and celebrate Avascular Necrosis-Osteonecrosis Awareness Day by 2024. This ambitious vision requires a collective effort.

To our esteemed congressmen, senators, and the President of the United States, we extend an invitation to join us in this noble cause. Avascular Necrosis-Osteonecrosis doesn’t discriminate based on political affiliations, and neither should our pursuit of awareness. We implore you to consider the impact of this rare disease on your constituents, urging you to champion the cause for an awareness day in every state.

It’s not a daunting task; it’s an opportunity for bipartisan collaboration, demonstrating a commitment to the health and well-being of the American people. A simple proclamation can go a long way in raising awareness, fostering empathy, and providing support to those affected by Avascular Necrosis-Osteonecrosis.

In the coming year, let’s collectively work towards making November 29 a day of national significance. Together, we can ensure that the stories of those touched by Avascular Necrosis-Osteonecrosis are heard, recognized, and celebrated from coast to coast. The journey has just begun, and with your support, we can light up the map with awareness, compassion, and unity.

Sincerely

Deb Andio

Founder

Avascular Necrosis-Osteonecrosis SuppooInt’l

http://www.avascularnecrosiseducation.com

“Like the majestic Phoenix that rises from the ashes, those of us living with Osteonecrosis are on a journey of resilience and hope. As we continue to advocate for awareness, we believe that our Awareness Day will soon shine worldwide, illuminating the path for understanding, support, and compassion. Together, our voices will soar, echoing the strength that lies within each of us.”

Osteonecrosis- and New Logo Designs More to Come.

Hey everyone! Today I want to talk about a topic that is close to my heart – osteonecrosis. Living with this rare condition can be really challenging, both physically and mentally. Osteonecrosis occurs when there is a lack of blood supply to the bone and joint, which can eventually lead to the collapse of the bone and the need for a joint replacement. It’s a tough journey, but remember, you’re not alone.

There are various underlying causes for osteonecrosis, including trauma to the bone or joint, blood clotting disorders, autoimmune conditions, cancer treatments like radiation and chemotherapy, as well as certain diseases like vasculitis, lupus, HIV, and sickle cell anemia. Lifestyle factors such as smoking and excessive drinking can also contribute to the development of osteonecrosis. Additionally, the chronic use of corticosteroids is a known cause for many individuals.

However, it’s crucial to note that not everyone who experiences these factors will develop osteonecrosis. Each person’s journey with this condition is unique, and it’s important not to blame ourselves or feel guilty for something that may be beyond our control.

But here’s the thing – we need better treatment options for osteonecrosis. Having access to alternative medications like platelet-rich plasma (PRP) therapy can make a significant difference in managing this condition and potentially preventing the need for joint replacements. PRP therapy involves using a concentrated form of a patient’s own blood to promote healing and regeneration in the affected area.

Unfortunately, insurance companies often don’t cover PRP therapy or other alternative treatments for osteonecrosis. This makes it challenging for individuals to explore all available options to manage their condition effectively. We need to raise awareness about the importance of these treatments and advocate for insurance coverage, ensuring that everyone has access to the best possible care.

So, let’s come together and spread awareness about osteonecrosis. Share your experiences and knowledge, support one another, and join the fight for better treatment options. Together, we can make a difference in the lives of those living with this condition. Don’t forget to use the hashtags #OsteonecrosisAwareness and #JointHealthMatters to amplify our message.

Remember, everyone’s journey is unique, but together we can make a difference. Let’s continue to spread awareness and support one another in this fight against osteonecrosis. Stay strong, warriors! 💪🙌

The Guardian

I’m excited to share with you one of the new logo designs for Osteonecrosis awareness! Introducing “The Guardian” – a symbol of strength, protection, and unity in the fight against this rare condition.

The logo features a bold and powerful image of a guardian angel with outstretched wings, symbolizing the support and protection we offer to those affected by osteonecrosis. The angel is seen holding a bone, representing the importance of bone health and the need to raise awareness about this condition.

The color palette chosen for the logo reflects the resilience and determination of individuals living with osteonecrosis. Shades of blue and purple evoke a sense of calmness, hope, and empowerment, while the green is for life and the touch of gold -white adds a touch of elegance and sophistication.

The Guardian logo aims to capture attention and spark curiosity, encouraging individuals to learn more about osteonecrosis and become advocates for better treatment options and insurance coverage. By using this logo, we are creating a unified and recognizable symbol that can be shared across social media platforms, websites, and events, creating a sense of community and solidarity.

As an influencer, it’s essential for me to use my platform to spread awareness and support those affected by osteonecrosis. I encourage you all to join me in using the hashtag #GuardianOfBoneHealth when sharing posts related to this condition and the new logo. Let’s come together and make a positive impact in the lives of individuals battling osteonecrosis.

Stay strong and keep fighting, warriors! 💙💜💚

Logo 2 The Multi-Phoenix

Also is

The phoenix is a powerful symbol of transformation and resilience, which aligns perfectly with the journey of those living with osteonecrosis. By incorporating the phoenix logo into our social media posts, we can further emphasize the strength and determination of individuals battling this condition.

Let’s use the hashtag #RisingStrong to accompany posts featuring the phoenix logo. Together, we can inspire hope and encourage others to rise above challenges and embrace their own inner strength.

If you’re interested in using the phoenix logo on your social media platforms, feel free to reach out to me for the high-resolution image. Let’s continue raising awareness and supporting one another in this journey of resilience.

Stay powerful, warriors! 🔥💪

Update

I maybe combining this site to my main blog at https://chronicallygratefuldebla.com/ now called joint-purpose.com

Please join me over there as I am hoping to have the transition completed by December31,2023

Lots of content to move. Check out Joint -Purpose.com and my Faith Blog www.joyful-echoes.com

Thanks

Deb

Join my new Clubhouse Room

All things arthritis

Since late stage Osteonecrosis leads to severe osteoarthritis I feel they are under the same umbrella although different in some ways and the same in other ways.

Link to join The Clubhouse New spot

https://www.clubhouse.com/room/wg5c5DG1G8iDl6pVd:EBeGc6yiEqlOHOXuTQYzP18p7uhtKpCBSkfvsgL7w-U?utm_medium=ch_room_pt&utm_campaign=YEvlhG2P4LoHYqbG1UhgLw-488396

Poor Diet and Being Overweight doesn’t help Osteonecrosis

I lived for 20 years with osteoarthritis but nothing was as scary and painful as my Osteonecrosis diagnosis. I gained a lot of weight because I. Oils no longer work and I won’t lie I stuffed myself with food to comfort myself. I went up to 293 lbs. I can’t believe I let myself get that big. Something had to change because I was too fat for a joint replacement and honestly I didn’t want one. So I had to do something, so I changed the way I ate I noticed a great improvement. People thought I was crazy but I had less pain.

I didn’t quit everything cold Turkey. I did stop smoking cold Turkey best decision I ever made.

I added more plants raw and cooked and lessened the meat intake. I started out having meatless Monday Wednesday and Friday soon it was meatless Saturday also.

I cut out 85% of all the crackers and cheese puffs all the stuff that we love but know it’s not real food. When I wanted chips I made a baked potato or a baked sweet potato. When I wanted chips and dip I made my own bean dip and hummus and dipped peppers, celery and sometimes a few crackers. I wasn’t perfect but I really began eating to live not living to eat.

My cholesterol dropped to fantastic numbers I went from total cholesterol of 210 to a total of 172 in a matter of months then down to 158. My good cholesterol went from 38 to 60. So I was on the right path. It wasn’t easy, it still isn’t easy because let’s face it junk food is every place. My next post I will post about how to eat healthy at fast food restaurants and yummy food fast that’s healthy!!

I became a flexitarian meaning I ate mostly plant based and once a week ate chicken and fish. Backed or grilled .

Good bye to greasy fried food, I also cut out 80 percent of processed junk .

Stopped all cola and sugary drinks I never was much of a pop drinker.

Many thought this was crazy and would not do much. But it did.

Then in 2019 there was a study that also confirmed similar findings .

I got off blood pressure medication and my bones didn’t feel like a tourniquet around them.

I also with the ok if my Ortho started taking Cureamed curcumin 375 1-2 times a day for 2 weeks then just once a day. It seemed to help my pain and thinned my blood some. So if you take blood thinners don’t just try this.

Always talk to your doctor before doing anything new.

Fast forward to 2022 thank God still no joint replacement (knee)

Below is some info on poor diet and obesity is not good for Osteonecrosis. Actually obesity and poor diet cause our body to have more inflammation and that gives us more pain. And can lead to many things.

So see a nutritionist get your diet in check and if you are a compulsive overeater go to some OA meetings , see a counselor what ever it takes to reclaim your health.

I lost about 95 lbs regained 16 during covid lock down. But back on track in May 2022 I am hoping by May 2023 I am at goal weight of 145 -150 lbs. it’s not easy and the older I get ( soon to be 60) the harder it is to lose especially when you have bone and joint issues.

But trying and still no joint replacement.

If you have a problem with food like binge eating, or just an unhealthy relationship with it check out https://oa.org/

See link on study below.

Click to access 1100002678220.pdf

5 years of pics

Exercising with Osteonecrosis and Osteoarthritis and Spondylolisthesis the trifecta

If you have Osteonecrosis of the knee like me exercise should and can still be a part of your lifestyle. But we must must must use caution and we just can’t go all willie nillie and do this or that on our own. We need to always first consult our ortho and then see a trained physical therapist one who understands osteonecrosis. The key is to know the right exercises and the right way to do them.

Generally, long-term exercise is safe for adults with knee pain from Osteonecrosis but as we know we can go from stage one to stage 3 in as less as weeks and as long as months even years, that’s why it’s imperative we keep in contact with our pcp and orthopedic.

Exercise when performed correctly, the right exercises can even help decrease our pain of osteonecrosis and osteoarthritis and other bone and joint conditions

It can improve our ability to carry out ordinary physical activities. We have to to keep our muscles strong as they support the joints and keeps them stabilized.

It may seem counterintuitive for exercise to decrease knee pain, because when our knees hurt we don’t really feel like exercising, but for me that’s when I have to push through because it will help my pain

But it’s helpful to understand how it works.

Exercise improves:

  • hormonal balance
  • lowers blood sugar
  • improves articular cartilage tolerance
  • strengthens muscles and muscles are what supports our bones.

Exercise also improves your muscle strength. Stronger muscles are able to carry your body weight more efficiently, relieving some of the burden put on the joints.

However, performing the “wrong” exercise or using poor form may increase pain or inflict irritation to the joint. 

“Pain with exercise isn’t normal,”

That said, it’s important to note that when starting a new exercise program, you may experience “muscular soreness,” which is different from joint pain. 

It’s normal to experience muscle soreness fir a day or even two after exercises, when I first started a simple walking program I walked every other day. I gave my muscles a chance to rest.

I liked my PT sessions and afterwards I got the Electrical Muscle Stimulation (EMS) device which helped my muscles relax and recover.

I highly suggest a physical therapist, they will be guiding you through the process. An expert will analyze your form and make suggestions. They show you how to properly do the exercises.

You don’t want to injure something else in the process of trying to stay active.

Biking , swimming water aerobics are much easier on the joints.

Corticosteroid‐Induced Osteonecrosis in COVID‐19: A Call For Caution A Call For Action

I think with the new Pandemic and all the new strains emerging patients, physicians surgeons and respiratory specialists should be paying close attention because I feel that there will be a sudden influx of men women and some children developing Osteonecrosis because of the treatment of Novel Coronavirus aka Covid19.

It seems that I see far more studies and concern over individuals getting osteoporosis that they overlook Osteonecrosis causes and complications.

And I really think it’s time we not only study and examine the effects of corticosteroids on the bones but we really need to start warning patients verbally.

Avascular Necrosis-Osteonecrosis Awareness Day 2021

Hard to believe another awareness day has arrived.

It’s been a struggle and challenge to get all 50 states to issue a proclamation: but being persistent is becoming rewarding. We now have about 1/2 the USA on board as 29 November being AVN-ON

To all those living with Osteonecrosis like myself, know I will not give up until every state has issued the proclamation.

We live with pain and uncertainty every day. But I assure you I will not give up until it’s recognized in every state.

Happy AVN-ON Awareness Day.

Wish you all a pain free day

Osteonecrosis and Organ transplant

Osteonecrosis is a well-recognized complication associated with organ transplantation.

It is a pathological condition characterized by the death of the cellular constituents of bone and marrow. The process of aseptic bone necrosis is associated with glucocorticoid use, and the mechanism by which glucocorticoids initiate the pathologic process has recently been elucidated.

Rates are particularly high in patients with systemic lupus erythematosus. The incidence of osteonecrosis also increases in patients on dialysis.

The exact prevalence of osteonecrosis after organ transplantation is, however, difficult to assess as many cases are clinically silent.

The most common symptom of osteonecrosis is hip pain that is usually deep in nature, localized to the groin with occasional radiation down the thigh to the knee.

Symptoms are usually exacerbated by physical activity and weight bearing and relieved by rest. In the late stages of osteonecrosis, pain is often present at rest, and patients may develop a limp, as they are no longer able to bear weight on the affected joint.

Osteonecrosis affecting the bone beneath a weight-bearing joint surface is associated with a significant risk of developing a subarticular fracture, which appears to initiate the symptoms.

Optimizing the dose of glucocorticoids has led to a significant reduction in the incidence of osteonecrosis post-transplantation. Substituting these agents entirely with calcineurin inhibitors may decrease this complication of the transplantation process even further. Early diagnosis using magnetic resonance imaging is essential for the success of available surgical interventions

Reference: https://www.sciencedirect.com/science/article/pii/B9780121835026500213

https://online.boneandjoint.org.uk/doi/full/10.1302/0301-620x.89b12.19400?journalCode=bjj&

http://www0.sun.ac.za/aotc/general/renal/renal.php